Who Is The Boss? You Or Fibromyalgia?

Who Is The Boss? You Or Fibromyalgia?

If I asked the question “who is boss? You or Fibromyalgia” to the general public, who is the boss between you and fibromyalgia? The positive thinking, well-intentioned people would likely say, “you are.” If you have Fibromyalgia then you know there are days when fibro is boss. Just as sure as the sky is blue, fibro is the boss during fibro flare ups and during bad weather or during a cycle.

So I ask again, to my fellow fibromites, who is boss, you or fibro? I would like to know from fibromites who have this illness what they think about this question? Here is my answer to the question.

Let’s compare fibromyalgia to a long season sport like basketball or baseball. The season is long and it requires a lot of management from the personal player’s standpoint all the way up to the manager or coach of the team. They both are endurance games and seasons. As a coach, you know that players are going to have a bad game every so often, but you don’t bench him on that alone. You look at effort and overall contribution to the team. You cut the player some slack during a down period, and give him some special attention or training needed to get past the dry spells.

You can’t judge the season by the performance of a week here or there, you have to take it in its entirety.

So what I am getting too is the Fibromyalgia is a situation that needs to be managed as opposed to an illness to beat. Try all you want with your pharmaceuticals, diet, sleep, therapies, exercise, and positive attitude, there will be times that, in spite all of that you have done managing your chronic illness, a flare will come. It may be in a few days, a few weeks or if you’re lucky, it might not come for several months. But that flare up will come as sure as the sun rises each day, the flare up will come.

There may be times when you feel like you’re winning and there are times when you feel like you’re losing. But if you keep the managers’ mind-set in the battle against fibro, you can enjoy the good times more and pass through the bad times easier.

who_is_the_bossIt’s not easy to manage something as complex as fibromyalgia, especially if you have fibro fog. I wouldn’t say I am the best manager of the illness but I’ll tell you what I do to try and manage my illness.

I have advocated in a few of my articles the use of a journal. I am not the best example of journal writing but I have done it, I am doing it currently, and I’ve done it enough to know that it works quite well. Journaling helps you remember what your symptoms were on a given day. It reminds you what the doctor said. It reminds you about lessons learned by trying various activities.

There are a lot of things we can’t do with fibro and there are a lot of things we shouldn’t do with fibro, but everyone is different. I still want to live as much as I can so I do things, not crazy things, but I do them knowing I will pay for it in the coming days or even maybe weeks. I know I am going to be sore and sick anyway, why not have some fun on the rare chances that come my way to do something out of the boring, ordinary daily grind. I record what I did and how I paid for it. I forget a lot of things because of fibro. I try to record weather conditions and how I felt when certain weather comes along. I use my journal to keep track of certain medicines.

Journaling is fantastic emotional therapy because you can usually express yourself to a journal better than to anyone else. With a journal you can look up in the past and see what you did and how you paid for it with an increase of symptoms or you can compare weather patterns and how it affects you. Best of all, you can remember your past in as much detail as you put into your journal writing. You can also use your journal for keeping track of questions for health care professionals and their answers.

I tend to ramble on in my posts so I will wrap this one up as an introduction to how to manager Fibromyalgia. In this case using a journal is a great way to manage Fibromyalgia. There are several other ways to manage this sickening illness we know as fibromyalgia and chronic pain. Let me know by way of comments to this post what ways or what methods you use to manage your fibro.

Dealing with the question, of “who is the boss? You or fibromyalgia?” I don’t think it is a good approach to think of dealing with a chronic illness in terms of winning or losing but rather think of the battle with fibro as something to be managed.

Troy Wagstaff © Copyrighted

Look for at least three or more posts on how to manage fibro in the near future.

Christian Daily Devotional: Surely He Hath Born Our Griefs And Carried Our Sorrows

Christian Daily Devotional

The Old Testament taught us that Jesus Christ “hath born our grief’s and carried our sorrows: yet did we esteem him stricken, smitten of God and afflicted.” This verse teaches us far more than we will cover in this devotional. We learn that Christ, himself, while suffering in the garden and on the cross, suffered and felt our grief and sorrow.

Jesus knows first hand how we feel when we are filled with sorrow, likewise he knows first hand our grief. Whom can we go to in this life that knows first hand how we feel? Many people can show empathy to us. We can show empathy to others, as we should, but we cannot know first hand their grief and we don’t know their sorrows but we can empathize with them.

devotional_born_our_griefs

But I digress. Since Christ has suffered the pains and anguish of our sorrows and griefs why do we insist on going through our sorrows alone? Why do we grieve alone? Why do we settle for empathy when we can receive first hand help from our Master and our Savior? Don’t get me wrong, empathy is very nice but there is more, there is more that we can receive it we reach out to our Lord who knows perfectly what we are feeling and how we are feeling.

He will help us if we reach out to him in faith with humility.

We Are Not Hypochondriacs . . . But Maybe We Should Be?

We Are Not Hypochondriacs . . . But Maybe We Should Be?

Fibrochondria

There’s always something to say about Fibromyalgia which speaks to the complexity of the disease. There’s always some new information coming out, not always helpful but sometimes that information is a gold mine. There is a lot to talk about when discussing fibromyalgia from fibromite to another.

That is where this article comes into play, discussing fibromyalgia from a fibromite who has more than thirty years of the disease under his belt to another fibromite.

This article is about “Fibrochondria.” What is Fibrochondria? It is a play on words obviously. It comes from fibromyalgia and hypochondria combined. To those with fibromyalgia, that may sound disturbing, but bare with me. Fibrochondria is the need for a diagnosed fibro patient to not confuse new or different symptoms with those symptoms that are known to come with fibromyalgia.

Consider this scenario: You have had fibromyalgia for seven years and by now are well versed in the symptoms you have. Of course you have the chronic wide spread pain and the fatigue but you’ve never noticed in seven years any symptoms related to memory loss or cognitive issues. Then you start to notice you are becoming forgetful. You walk into a room and forget what your looking for. Everyone does that, but in your case it’s happening way to often. All of the sudden you start forgetting words you know that you should know. You can describe the meaning of the word but can’t think of the word. This can come up in a mid sentence. You are forgetting names way too frequently. Other types of memory and cognition problems blur your mind.

You take a look at the symptom list of Fibromylagia and see fibro fog. You look into it a little more and decided that these symptoms are just another part of fibromyalgia. At least, now you know why you are having these troubles. We know that there is no know cure for fibro so you take a deep breath and forge on. At least now you know why you’re having memory troubles . . . or do you?

fibrochondria_1This is a big mistake to assume that the symptoms you are having automatically fall under fibromyalgia. It is very possible that what you have is fibro fog but it could also be a number of other issues with your brain. Don’t assume that a symptom you are having is part of fibromyalgia just because it is on the symptom list. Few fibro patients have every single symptom on the list. It is entirely possible to have just wide spread chronic pain and nothing else. Therefore, you should talk to your doctor first before jumping to conclusions.

We need to be hypochondriacs over every new symptom until we know if it is yet another fibro issue or something else. What I mean by that is that we need to keep on top of our health because we are chronically ill. If we can treat the new symptom then that is one less thing to worry about. So, if a new symptom presents itself, go get it checked out. If the symptom is something else, it could get worse.

I can relate to this. I have had bouts of lightheadedness and extreme fatigue many times over the past years but recently I was going through those symptoms again only it didn’t make sense. My CPAP was properly adjusted, by lungs and heart were both great. I had over come secondary pulmonary hypertension. My heart was healthy and by blood pressure was excellent. I was so fatigued I just needed to sleep. I wasn’t ‘fatigued tired’ but rather ‘fatigued sleepy’ in the extreme. I couldn’t shake the dizziness and lightheadedness and I played with some nausea. A time or two I thought I would faint so I quickly sat down and breathed slow and deep.

I went to the doctor to discover my heart rate was down to 45. The doctor put me through four various tests on my heart and lungs. Two tests were over night tests. I ended up with the Cardiologist telling me my heart is healthy and “looked great.” Since he didn’t want to rush into a pacemaker he instructed me to monitor my heart rate and blood pressure for six months and then go see him. They verified in two of the test that I was running a very low heart rate which, with one test got down to 36. My blood pressure continued to be excellent. All of the other tests “looked great” with one exception which was my cholesterol. It was a little high and since it was caught early I could easily manage it without meds.

As fibro patients we are sick of the term hypochondria because many health care providers have called us that or at least insinuated that we are making up symptoms and sometimes some fibromites have been accused as attention seekers from doctors.

To bring up the term hypochondria is treading on water, but it is something we have to consider. Not all symptoms that match fibro symptoms are fibro related. A single symptom could apply to hundreds of illnesses which is why we must be ever vigilant in determining if new health problems belong under the fibro umbrella or are their own illness or a symtpm of something else. We need to be fibrochondriacs.

Using the word “fibrochondria” is just to introduce a little levity in a despairing illness. This article is just my own opinion and in no way medical advise. Before doing anything that could affect your fibromyalgia or any other health issues always consult with your health care provider.

Troy Wagstaff © Copyrighted

Thankful For Fibromyalgia

Thankful for Fibromyalgia

Today I had an epiphany. I felt it in my heart for the first time. I am thankful for having Fibromyalgia.

As Christians we are taught to trust in the lord which means that we gratefully accept the outcome of his divine will. If we say, we are “leaving it in the hands of the lord” we are also saying that it is okay for whatever outcome to happen.

thanks_for_fibroIn my case it has been thirty-one years of Fibromyalgia and numerous other health problems and family health problems that I have been called on to endure and deal with. I am grateful for all of that. Intellectually, I knew it was the Lords will but I have not completely felt it in my heart until today.

There have been countless miracles along the way of my fibro journey for which I am thankful, thankful from the heart.

We can know truth in the mind and we feel truth in the heart, the heart is where the Holy spirit touches the soul.

Today, April 24, 2015 is the day I can say, I truly am thankful for my health problems and especially the leader of the pack, fibromyalgia. I know that it is the will of the Lord for me. I know there are other things to learn about my health and my families health issues, but for now, I know I am where the good Lord wants me to be.

Troy Wagstaff

Jesus Suffered, Bled and Died For Our Sins.

Jesus Suffered, Bled and Died For Our Sins

This Christian meme is free to use unaltered.

Jesus awoke from death, so that we might live again.

Jesus suffered, bled and died for our sins and awoke from death so that we might live

Jesus suffered, bled and died for our sins and awoke from death so that we might live

Daily Devotional: Whom The Lord Loveth He Correcteth

Daily Devotional: Whom The Lord Loveth He Correcteth

My son, despise not the chastening….For whom the Lord loveth he correcteth.

devo_despise_not_chastening

This inspirational daily quote tells us that through the Lords love he will, from time to time, chasten us to help us make course corrections. They may seem stiff and unpleasant but sometimes that is the price of salvation. Remember the Lord loves us in good times or bad.

Inspirational Thoughts: Luck and Preperation

Inspirational Thoughts

Luck is when preparation meets opportunity.

Control your luck by being prepared.

inspirational_quote_luck_preperation

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