Do People Really Live this Early in the Morning?

Do People Really Live this Early in the Morning?

Insomnia is a big problem for many of us who have chronic fatigue, fibromyalgia or chronic pain. For many different reasons we have trouble sleeping. I don’t know about you champions, but before Fibro was officially diagnosed I was an early to bed early to rise kind of guy. Now that I have insomnia, I go to bed late and get up late, most of the time.

When life demands that I wake up early, about fifty percent of the time I can take my MEDs and I can get to bed in time to accommodate an early rise. This morning was one of those days when I got decent sleep in spite four or five interruptions.

how_fibro_changed_me_1I woke up at 8:15 a.m. to take my daughter to work at 9:00 a.m. I had enough time to take my pain MEDs and to rest my back on my heating pad for at least a half hour.

We left at 8:48 a.m. We saw a perky thirty-something woman jogging and wondered how someone could be out so early and be so perky and be jogging all at the same time. My daughter has developed bad sleeping habits along with me and my wife as she grew up. So this is early for her.

We live in a small town and on main street, the main thorough-fare, there were tons of cars on both sides of the road. That’s awfully early for this many people to be out and driving around on a Saturday. It was now 8:52 a.m.

As Kate and I were talking, on the way to the salon, I was reminiscing about the days when I used to go to work as someone else’s employee. I would be at my desk and working by eight in the morning. I realized I would wake up about an hour early to be ready for work. When I started a longer commute I woke up another hour and a half earlier to get ready to get to the bus or train. The last time I did that was about February 2002. I worked for myself for several years before my official diagnosis of fibromyalgia and then later becoming disabled.

As I reflected on that memory on my way home, by now it was 9:04 a.m., I realized how much fibromyalgia has affected my life. All these years later, eight in the morning is sleeping time. When millions of people are hard at work, I am sleeping or just waking up. Sadly, this is just another example of how fibro has, without my consent, changed the way I am forced to live my life.

Inspirational Quotes To Validate Those With Fibromyalgia

Inspirational Quotes To Validate Those With Fibromyalgia, Chronic Pain and Chronic Fatigue.

 

These memes that promote fibro awareness and support for Chronic pain and chronic fatigue are just some of the countless memes on that subject located on a FaceBook group called FibroChampionsBlog at https://www.facebook.com/groups/FibroChampionsBlog

 

These memes are designed to validate those who suffer from the chronic nature of fibromyalgia, chronic pain, chronic fatigue and any other chronic illnesses the have pain or fatigue as a major symptom.

 

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FibroChampions means anyone with chronic fatigue, chronic pain or any other chronic illness where chronic fatigue or pain is part of the symptomology. NEVER GIVE UP, NEVER SURRENDER!

 

 


 

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Three Good Days Is All You Get

Three Good Days Is All You Get

 

This week, three decent days of pain management is all I got. My average pain is around a six to seven. The last three days have been around a four or five. Mostly a four. Of course nothing ever goes completely right. I have had huge bouts of chronic fatigue but the pain has been manageable.

I am frustrated. On the rare chance I get to a point where the pain is tolerable, I get greedy and I want several more days pain-free.

fibrochampionsblog_frustration_no_morethan3good_daysI am also frustrated because when I am having one of those rare episodes of good pain management I get nervous for fear that the pain will blow up, out of no where and it makes me leery as to what I try to do. I’ll take the pain-free days even though they wont last and even though I don’t always takes advantage of a pain free day.

They never include frustration as a symptom of fibromyalgia. But the frustration is as real as the pain itself.

Having said all that, I am grateful for three decently managed semi pain-0free days this past week.

Fibromyalgia – Critical Thinking

Fibromyalgia And Critical Thinking

There is never any shortage of articles or advertisements claiming to help treat fibromyalgia or cure fibromyalgia. Every one of them leads directly or indirectly to money. No one wants to give that information or product away for free.

When you are in chronic pain all the time, day after day, week after week, month after month, year after year, you make for easy prey for some husker that will sell you something or teach you something for a modest fee, of course.

fibro_critical_thinkingIt can become expensive and costly to believe every claim or advertisement you hear about fibromyalgia.

There are people who aren’t selling anything, just passing on information. I do that all the time. I am not selling anything from my blog posts. I do pass along helpful information. Regardless if it is me or someone wanting to sell you something, it is important that even though it sounds like a wonderful thing you need to think it through. Use critical thinking.

For example, whenever I think of anyone either sharing information on nutrition to cure fibromyalgia or selling a book about nutrition that will stop fibromyalgia in its tracks I consider the fact that the latest information over that last three or four years is that fibromyalgia is not an autoimmune illness, it is a neurological illness. If there are certain types of food with certain types of herbs or trace elements, chances are, you can get them in a supplement form and not have to buy a big expensive book to see if it works. Chances are it will never work. If those elements or herbs really cure fibromyalgia, chances are the pharmaceuticals would synthesize it and make it available to everyone.

Don’t get me wrong, I am all for eating as healthy as you can afford. Good nutrition is the secret to overall wellness. If you are disabled and on a strict limited income, you have probably noticed that produce and other healthy food are expensive.

When you are involved in critical thinking you never take anything at face value. You look into it and compare the assertions to your own research. You don’t accept what’s being presented to you without thinking and researching the idea. Don’t read one article an assume it is right for you. Dig in a little and see if after your research and critical thinking, is this right for me?

Troy Wagstaff

Gone But Not Forgotten

Gone But Hopefully Not Forgotten

A Resurgent FibroChampion

blog_meme_gone_not_forgottenI have maintained a low profile for the last month and a half. I have been working on finishing my first novel. I first started writing my Blog, FibroChampionsBlog at CallahanWriter.com to promote the cause of fibro awareness. I then realized that, having fibromyalgia myself, for more than thirty years, one of the things we need besides a cure is validation and inspiration. I’ve been working on adding posts related to that way of thinking. I have a set of memes or graphics that I will be adding to my Blog shortly, which came from my rough draft of the novel I am working on. I think most fibro patients or fibro champions, as I like to call us, will appreciate them.
After writing off and on for a while, mostly for my Blog, I learned from my neuropsychologist that fibro fog affects the body much the same ways that brain damage or traumatic brain injuries affect the brain. Just because you may have brain damage or TMI doesn’t always mean the damage is permanent. Some or all of the memory portion can be reclaimed by physical therapy.
fibrochampionsblog_9Yes, physical therapy. I’m not talking about exercises that work the muscles and joints, but exercises to physically work your brain. I heard an ad on the TV or radio about seniors learning a foreign language to help them keep their memory sharp. I ask my doc about that and she said it is true. She went on to say that any language-art affects the brain the same way.
I asked about writing, would writing have the same effect as learning a foreign language? The answer was yes. She went on to say that any activity that works the brain actively, like reading, computer games that need strategy, writing, learning languages, puzzles, crosswords, sudoku etc., they all have the same effect. Unlike the muscles in our body that need time to rest and recover between workouts, the brain can and should be worked out every single day for best results.
I like reading and writing. In the past two years I have read about a hundred books. I have written a lot. Somehow, I got the idea to write a novel where the protagonist, the main character has fibromyalgia and has to deal with it through out the story. I wanted the story to have fibromyalgia as a conflict against the main character.
I have spent six months writing the book and completely thrown away one story line and finally found the characters I wanted and then threw out two plot lines until I finally settled on a plot that could go the distance.
You all know how fibro fog does more than affect the memory, I finally had what I wanted, I just needed to complete the rough draft. I had serious doubts I could finish it and so I finally put everything aside and forced myself to do nothing else but wallow in pain and work on completing the novel to the first draft level. I needed a story laid out from start to finish. I needed it as much for a sense of completion. Big projects can be difficult for us fibrochampions. Now that I have finally completed the rough draft, I have a sense of major accomplishment and I feel like I can take the story all the way to publication. That won’t be for a few months, but I feel like I can actually do it.
AND I can say that after about eighteen months of physical therapy for my brain I am remembering things a little better. I still have serious memory issues, but over the last couple of weeks I have noticed a small difference in my memory.
What I want to say to you all is that physical therapy for the brain works and most of us are disabled and have the time to work the brain every day via computer brain games, reading books, especially creatively written books. Writing is good. Languages are good. Eighteen months will pass where you try it or not. Two years, three years, five years, or ten years will pass by, whether you try or not. Everything that counts as physical therapy can be done in bed, on a couch or recliner. Good luck.

A Day In The Life Of Fibromyalgia

Another Day In The Life Of Fibromyalgia

For almost two months I have only posted a few times. I’ve been in the throes of a fibro flare. When I have been blessed with a few good days, I have been working on my first novel. It’s a mystery with the main character that among other things has to deal with a mysterious chronic pain problem. Later on he finds a diagnosis of fibromyalgia. In spite of his illness, he is the only one who can solve the mysterious disappearance of countless young people who have gone missing on Lake Shaft.

I’ve spent a few years working on my Blog and I don’t want it do let it die. So I am trying to institute a regular column called A Day In The Life Of

Fibromyalgia, to keep my posts more regular. It will be a type of journal of the details of various days of how I am fighting fibromyalgia or how it’s fighting me. I will still, as health permits, write articles about this vile disease, we so hatefully call fibromyalgia.

Lately I have been having some serious pain from the top of my ankles, both, up the outside of the leg about eight inches. It hurts when I walk. I’ve been trying to do yoga, which includes, among other things balancing poses. At first I thought that might be causing the pain, then I realized when I sit in my favorite recliner, I cross my feet. Then I felt the ligament pull from my ankles up to the side of my leg. I realized that was where my pain was coming from.

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Why is that important? For most people it is probably not very important. However, for those of us who have fibromyalgia we are extra sensitive to the slightest normal pain. Now that I have identified the pain, I can stop crossing my legs at my ankles, it will heal and then that little molehill will stop feeling like a mountain.

For us fibro champions, we have to take care of the slightest aches and pain to prevent the minor pain so it won’t feel like a major pain.

Troy, A fibro champion.

Inspirational Memes For Fibromyalgia

Inspirational Memes For Fibromyalgia

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