How Fibromyalgia Affects My Daily Life – Star Gazing

How Fibromyalgia Affects My Daily Life – Star Gazing

There are so many symptoms of fibromyalgia that is seems impossible, during an episode of poor health, to fully figure out what triggered the episode. When it’s all said and done, sometimes fibromyalgia is like riding a roller coaster, there are up and downs, twists and turns, and in the end you don’t know why you’re having an episode except that you have fibromyalgia. I’m calling them episodes rather than flare ups because we refer to a flare up as a short term increase in pain. The issues I am talking about are just about everything but pain.

Case in point.

day_in_the_life_fibro_star_partyI went with my litter buddy, who is truly an astronomy buff and he’s not quite five years old, to a Star Party last night hosted by the Salt Lake Astronomical Society in Stansbury Park at the Observatory near the Great Salt Lake.

His mom and baby sister came along, as did my oldest daughter and her date. There were more than twenty telescopes trained on Jupiter and Saturn but not Venus. We meandered around the park looking at these planets and the rings and moons around these planets through many different telescopes. One kind telescope owner aimed his telescope so I could see Venus. It wasn’t spectacular, but at least I got to see it.

I noticed that as I looked through each eye piece of every telescope that my eye would physically hurt. Not the kind of hurt when you read too much or are on the computer too much. It was like muscles behind my eyes were getting sore.

This in turn made be dizzy and nauseated. To be fair, I was dizzy and nauseated on the hour long drive getting to the park, but between the crowd and the focusing on the eyepieces of the telescopes my symptoms got worse.

I was leery about the crowd, but because it was in a big park with a lot of space and open air, I was hopeful the crowd would not be over stimulating. I was wrong. The optic nerve muscles surprised me. It was clear that I was over stimulated and I was sick because of it.

After I got home, I was hoping a good night’s rest would solve everything. Nope. I woke up several times in the first three or four hours after finally getting to bed. Finally, I was able to relax enough to get four or five consistent hours of sleep. I’ve been sick all day today and in a lot of pain. My neck is seizing up and causing tension headaches. My tens machine wires are broken so I can use that to help. The pain MEDs and muscle relaxers help but not completely.

Just another example of how fibromyalgia affects my daily life. Sigh.

Troy Wagstaff

A Day In My Life With Fibro – At The Movies Jurassic World

A Day In My Life With Fibro – At The Movies Jurassic World

I went to see Jurassic World this evening with my daughter. She was taking me on a date for a father’s day gift. Ya, she’s awesome. I enjoyed the movie. We didn’t see it in 3D thankfully. I was overwhelmed with the traditional 2D viewing, because something happened while I watched that great movie. All the big scenes and noise and motion and wide shots were a lot of visual stimulation.

jurassic_world_big_movies-fibroI didn’t notice it at first, but then after a while I was getting a small headache. My eyes got tired and I felt over stimulated. I know I’m getting old, but I think it may be related to fibromyalgia and the related sensitivity issues. I don’t see any 3D movies anymore because they are verifiably hard on my eyes and head. But now the big concept, big scenes type movies for the summer are coming out and I worry that I may not be able to see them.

I really liked Jurassic World, and I did see the original Jurassic Park. To me they are two different movies with a similar theme. The movie got me hooked and I stayed the whole time. But now it seems that parts of me like my eye’s, neck and brain are still coming down off that sensory roller coaster I was just in.

Have any of you had that problem with big movies with a lot of noise, action and big scenes? I wonder if it is related to chemical and light sensitivity that fibro is known for? What do you all think?

IS FIBROMYALGIA THE END OF LIFE AS WE KNOW IT? – PART 1

IS FIBROMYALGIA THE END OF LIFE AS WE KNOW IT? PART 1

This is a perfect example of fibro-fog. I posted “Is Fibromyalgia The End Of Life As We Know It Part 2” before I posted the Part 2 in a series of articles exploring this concept. I guess that’s what you get when you are a patient of fibromyalgia trying to blog about fibromyalgia. Good example of fibro-fog. Ooops.

Is fibromyalgia (fibro) diagnosis the end of life as we know it? The answer is yes. With fibromyalgia, life as you knew it is over. Gone for good, never to return, unless scientists discover an all to needed cure for the disease.

That sounds like a negative thing to say. I agree, it is a negative statement but fibromyalgia is a negative disease. And it is a true statement.

fibro_end_of_lifeThere are many diseases that will kill you. In that sense, fibro is not so bad. Keep in mind, the statement “end of life as we know it.” Fibro is not the end of life, it’s just the end of the life you once knew.

Some well meaning people may say, “you need to be positive, you can beat this but you need to be positive.” I’ve heard those comments directed at me more than once. The thing is, there is no known cure for fibromyalgia, a disease of the central nervous system. I have great hope that science will one day discover it’s origins and come up with a cure or a much better way to treat it than we have now.

I feel like accepting the fact that with fibro, your life is over as you knew it is both a positive thing to say and a cathartic statement freeing you up to adjust to a new life. Within that new life you can be very positive and I hope all of you are positive in your outlook on life.

Having a positive outlook on life, when you are in chronic pain and sick from the many symptoms of fibromyalgia, is hard to do but worth the effort.

Sure you will have some good days and some bad days in your struggle with fibromyalgia but the ebb and flow of fibro is daunting when you don’t know what kind of day you’re going to have when you wake up.

The secret to being positive with fibromyalgia lies in part with accepting the limitations and then work around them. We need to let go of the expectations we had in our old life and create new expectations for our new life under the thumb of fibromyalgia.

Some people say, “I was just diagnosed with fibromyalgia but I am not going to give into it. I am going to fight it and I am going to beat it.” I’ve heard this tune sung by many fibro patients over the years and it is sad because they will use precious energy fighting the wrong battle.

As we all know, energy is a precious commodity to those who suffer with fibromyalgia. We need to use it wisely. I’m talking about both physical energy and emotional energy.

It’s okay to let go of the life you once had, in fact it is important that you do. Then you can focus on how to make your knew afflicted life of fibromyalgia as positive and productive as possible. You can have a positive future in spite of the pain and other terrible symptoms of fibromyalgia. In Part 2 we will look at the ways in which we can let go of life as the way we knew it and embrace the new life with a good attitude and even be successful in spite of all the interrupting symptoms of fibro in our life.

Be sure to follow this blog so you will be notified when the next article is posted to CallahanWriter.com.

Troy Wagstaff ©

Symptoms Of Fibromyalgia

Symptoms Of Fibromyalgia

These are not all the symptoms of Fibromyalgia but it’s a start. Use this meme as a fibro awareness meme, just refer back to this blog as the source of the meme.

fibro_subart

RIP – 9 Things I Miss About My Old Fibro Free Life

RIP – Mourning The Loss Of Your Pre-Fibro Life

I lost a dear friend. It’s been eleven years now, but I still miss him. He was married with three girls. He enjoyed being active with his wife and children. He would take them swimming and fishing. They played in the snow together.

He was very active. He liked to run and ski. He was an avid gardener. He enjoyed skeet shooting and target shooting. He was a hard worker. He started his own business and worked 18 hours a day to get it up and running. It was quite successful until near the end.

His life was taken from him, at least the life he knew was taken from him by fibromyalgia. It’s been eleven years now and his life will never again be the same. He is still a fond memory, but I miss him every day. But now I live and battle and strive to exist and to be meaningful in spite of fibromyalgia. I still have hope for a new life with fibromyalgia.

Nine specific things my old self didn’t have to worry about, which is nine things I miss about my old fibro free life.

rip_hope1. No chronic pain

2. Appropriate energy

3. Sufficient strength

4. Ability to be spontaneous

5. Ability to work

6. Lack of sleep problems

7. The ability to remember everything I normally could

8. Participate in hobbies the fibro took away.

9. Participate in everything else the fibro took away.

But until I get back to my old self, yes, I hold out hope that I will be fibro free and back to my old self, either in this life or in the next life, I will be fibro free.

Thankful For Fibromyalgia

Thankful for Fibromyalgia

Today I had an epiphany. I felt it in my heart for the first time. I am thankful for having Fibromyalgia.

As Christians we are taught to trust in the lord which means that we gratefully accept the outcome of his divine will. If we say, we are “leaving it in the hands of the lord” we are also saying that it is okay for whatever outcome to happen.

thanks_for_fibroIn my case it has been thirty-one years of Fibromyalgia and numerous other health problems and family health problems that I have been called on to endure and deal with. I am grateful for all of that. Intellectually, I knew it was the Lords will but I have not completely felt it in my heart until today.

There have been countless miracles along the way of my fibro journey for which I am thankful, thankful from the heart.

We can know truth in the mind and we feel truth in the heart, the heart is where the Holy spirit touches the soul.

Today, April 24, 2015 is the day I can say, I truly am thankful for my health problems and especially the leader of the pack, fibromyalgia. I know that it is the will of the Lord for me. I know there are other things to learn about my health and my families health issues, but for now, I know I am where the good Lord wants me to be.

Troy Wagstaff

Fibro Awareness

Fibromyalgia Awareness

It used to be that many unintelligent doctors called Fibromyalgia a “trash-can diagnosis.” That was very insulting to me and many of my Fibro friends. It now seems most doctors acknowledge Fibromyalgia. Now the issue with Fibromyalgia is to educate people to know that Fibromyalgia is much more than just a chronic pain illness. There are so many more symptoms to Fibro than just chronic bone crushing pain.

It’s not that we want everyone to feel sorry for us. We are still in education mode, trying to educate people about what we suffer. We have what falls into the category of an “invisible disease.”

Just because we look healthy doesn’t mean we are. People with mental health problems look healthy as do people with diabetes, unless they’ve lost a foot or leg.

fibro_awareness_2Just so you know, Fibromyalgia is like having the worst possible muscle aching flu all the time. Others say it is like having arthritis all over the body. Recently I hear a doctor say it’s like having a migraine all over the body.

I have had Fibromyalgia for 31 years I can state with absolute certainty that all of those comparisons are true.

Imagine having an illness with the following symptoms:

Memory loss, skin rashes, skin sensitivity, itchy dry eyes, blurriness, dry mouth, restless legs, IBS, headaches, chemical sensitivity, sun light and UV light sensitivity, insomnia, migraines, impaired concentration, depression, anxiety, impaired coordination, ringing in the ears, dizziness, and assorted neurological symptoms.

That is a long list of symptoms. You would be one sick puppy if you had all or most of those symptoms, agreed?

Like I said earlier, we are not looking for sympathy but education. When someone tells you they have been diagnosed with Fibro, now you know what they have to contend with.

Now for good measure, add chronic, body wide pain to the mix. Welcome to my world and the world of millions of other Fibromyalgia patients. Fibromyalgia affects both men and women, although more women than men are currently diagnosed.

 

Troy Wagstaff  © All rights Reserved

Free Fibro Memes

Free Fibromyalgia Memes

fibro_unpredictable

fibro_fog1

fibro_awareness_callahanwriter

Fibromyalgia Awareness Free Graphics Or Memes

Fibromyalgia Awareness Free Graphics Or Memes

Use these Fibro memes for free to raise awareness for Fibromyalgia. Just give this site credit. Thanks and good luck.

Fibro Pain

Pray For Pain


Fibro Awareness

Fibro Pain

 


 

Fibro Forgiveness

Fibro Forgiveness

 


 

Fibro is a pain in the...everywhere

Fibro is a pain in the…everywhere


Can you imagine

Can you imagine

 


Fibromyalgia Disorder

Fibromyalgia Disorder

 


 

Wanted...Doctors

Wanted…Doctors

 

 


 


 

Fibromyalgia Free Fibro Awareness Memes

Fibromyalgia Awareness Memes

Fibromyalgia Links

Fibromyalgia Links

fibro pain

Fibro when even your eyelids hurt

Fibro people faking looking well even though they are not.

Fibro people faking looking well even though they are not.

Keep Calm

Keep Calm And Pretend Your Fibro Magically Went Away