Fibromyalgia – Critical Thinking

Fibromyalgia And Critical Thinking

There is never any shortage of articles or advertisements claiming to help treat fibromyalgia or cure fibromyalgia. Every one of them leads directly or indirectly to money. No one wants to give that information or product away for free.

When you are in chronic pain all the time, day after day, week after week, month after month, year after year, you make for easy prey for some husker that will sell you something or teach you something for a modest fee, of course.

fibro_critical_thinkingIt can become expensive and costly to believe every claim or advertisement you hear about fibromyalgia.

There are people who aren’t selling anything, just passing on information. I do that all the time. I am not selling anything from my blog posts. I do pass along helpful information. Regardless if it is me or someone wanting to sell you something, it is important that even though it sounds like a wonderful thing you need to think it through. Use critical thinking.

For example, whenever I think of anyone either sharing information on nutrition to cure fibromyalgia or selling a book about nutrition that will stop fibromyalgia in its tracks I consider the fact that the latest information over that last three or four years is that fibromyalgia is not an autoimmune illness, it is a neurological illness. If there are certain types of food with certain types of herbs or trace elements, chances are, you can get them in a supplement form and not have to buy a big expensive book to see if it works. Chances are it will never work. If those elements or herbs really cure fibromyalgia, chances are the pharmaceuticals would synthesize it and make it available to everyone.

Don’t get me wrong, I am all for eating as healthy as you can afford. Good nutrition is the secret to overall wellness. If you are disabled and on a strict limited income, you have probably noticed that produce and other healthy food are expensive.

When you are involved in critical thinking you never take anything at face value. You look into it and compare the assertions to your own research. You don’t accept what’s being presented to you without thinking and researching the idea. Don’t read one article an assume it is right for you. Dig in a little and see if after your research and critical thinking, is this right for me?

Troy Wagstaff

14 Tools To Manage Fibro Fog

14 Tools To Manage Fibro Fog

Reduce The Stress Of Fibromyalgia

fibro_smart_phone_management_tool

There are more than fourteen tools available that not only help manage fibro fog, but can also help in reducing some of the stress of having fibromyalgia.

For those of us with Fibromyalgia, we are always in constant pain and for most of us with fibro, we also suffer from fibro fog. Whether you suffer from fibro fog or not, these tips will help you with fibromyalgia and will help even more if you have fibro fog.
With a smart phone, we can lighten up our load in a major way as we limp along in a life filled with lost memories, foggy brains and chronic pain.
My smart phone is an iPhone. All smart phones have these features built into the phone or have equivalent apps.

From experience, I am going to share with you the tools I use on my smart phone to help with fibro fog and fibromyalgia.

1. Camera: Having a camera in your pocket or purse is a great tool for memory. If you see something that you’re afraid you’ll forget, then take a picture of it. You can use the camera to take pictures of your pill bottles, instructions from the doctor or anything else that you’re afraid you might forget. When looking at the pictures they can be enlarged so it is easy to see the details.

You can reverse the camera for selfie’s. That also makes for a good mirror. If you want one less thing to carry around in your purse, then instead of taking a selfie use the camera to see how you look before going into an appointment or whenever you need a mirror.

I discovered one time, while scrolling through my pictures that it was like a photo album. Looking at the pictures I had taken for fun and for fibro reasons, I had memories I otherwise would have forgotten. It was fun to recall events that I had forgotten. Take pictures liberally and back them up from time to time on a hard drive or thumb drive.

2. Along with the camera to help you not forget things is the Notes App. You can open the app and type messages to yourself. You can use the Notes for a shopping list. If typing with those tiny keys is hard, or in my case frustrating, then use the dictation button. Just to the left of the Space button is a button with a microphone. Click it and it will record your voice and type your words in the Notes page.

3. Along with, or in place of the Notes App, you could use the Voice Memos app to speak instead of writing with those little buttons. It’s a built in digital recorder. Personally, I prefer to use the voice recorder in Notes. But that’s just me.

4. The Calendar App may become your new best friend. When I started to use it, the first five or six times it seemed clumsy, but after I got the hang of it, it became much easier to use. We are always going to visit doctors and we make many appointments. After you place your doctor’s appointment in the calendar, if you try to schedule another overlapping appointment, you will see the mistake and adjust your appointment time. With your smart phone you can see when your other appointments are, without getting up and going to the calendar on the wall. With the calender app you don’t need to worry about losing all those appointment reminder cards.

5. The Reminders App that comes standard on my iPhone will remind me of upcoming events. It ties into the Calendar App as well. If you press the little blue “i” after typing in your text reminder then you will go into the Details section of the Reminder. You can choose a day for the reminder and set an alarm and a time for that alarm. If it is something every day like taking your pills at a certain time, then you can repeat it every day, every week, etc. You can further edit it to a monthly or yearly reminder. There are other features like Priority and Notes if you have complicated instructions for taking your MEDs.

6. Voice Activation. Several of the things we have mentioned already and some yet to be mentioned can be voice activated by clicking on the Microphone button or by holding the button down at the bottom of your phone. I use it a lot to set alarms. It can be used to set Appointments, create Notes, create Reminders, play music, check the Weather, and you can ask for directions to wherever you want to go if you have a GPS map app on your phone.

7. Music. Being able to play music can be calming, entertaining and fun.

8. Game Apps can help you kill time during a long wait at the doctor’s office. If you use strategy games, it can count as physical therapy for your brain and fibro fog.

9. The Weather App is essential during winter of periods of bad weather. We all know how bad weather can affect our stiffness and pain flare ups.

10. The Calculator is a nice convenience. It can be voice activated. This is helpful for finding the best value when shopping or helping you with your MEDs.

11. Some smart phones allow you to adjust the text, making it larger or smaller.

12. Flashlight App I had to download the Flashlight app. It has been helpful in so many ways. If you’re having trouble at night finding the right key, use your flashing light. Need to jump start your batter at night? Use your flashlight.

13. Google Maps or other GPS mapping apps can be used to get you around town, or can guide you on your vacation. I prefer one such as Google Maps that is voice activated.

14. Compass App is self explanatory to some extent. But it also has the numbers at the bottom of the compass that tell when you are at any given moment in the form of longitude and latitude which can be used in emergencies to tell emergency personnel where you are at.

If you have an iPhone you can ask Siri, what she can do and you can get a Tips app to learn how to better use the phone. The more you use your smart phone the more helpful it begins to be. I downloaded the Kindle App so I can read books while I am in the waiting room in the doctor’s office. There are hundreds, if not thousands of free e-books on Amazon you can download or read from the cloud.

Other useful Apps are games, email app for your email program, Pinterest, Facebook, Browsers, Bank apps and whatever else makes sense for you. I almost forgot to mention medical apps that can record all medicines you’re taking and a list of medical problems you have, allergies and a host of other medical information. I am surprised by how many of these apps are free to download.

When I first became mobile after a couple of years of trial and error, I carried around a bag to put many things in that bag that I can now have in my smart phone which can be carried in my pocket. I also bought a protective covering that protects against scratches and damage incurred from dropping the phone.

Sometimes when I go on about how cool a smart phone can be for someone like me with chronic fatigue and fibromyalgia, I almost forget that it is a phone as well. I can talk or text with anyone around the world. The smart phone is great non medical technology for those with chronic illness like fibromyalgia, chronic fatigue, chronic pain, or Lyme disease to mention a few.

Gone But Not Forgotten

Gone But Hopefully Not Forgotten

A Resurgent FibroChampion

blog_meme_gone_not_forgottenI have maintained a low profile for the last month and a half. I have been working on finishing my first novel. I first started writing my Blog, FibroChampionsBlog at CallahanWriter.com to promote the cause of fibro awareness. I then realized that, having fibromyalgia myself, for more than thirty years, one of the things we need besides a cure is validation and inspiration. I’ve been working on adding posts related to that way of thinking. I have a set of memes or graphics that I will be adding to my Blog shortly, which came from my rough draft of the novel I am working on. I think most fibro patients or fibro champions, as I like to call us, will appreciate them.
After writing off and on for a while, mostly for my Blog, I learned from my neuropsychologist that fibro fog affects the body much the same ways that brain damage or traumatic brain injuries affect the brain. Just because you may have brain damage or TMI doesn’t always mean the damage is permanent. Some or all of the memory portion can be reclaimed by physical therapy.
fibrochampionsblog_9Yes, physical therapy. I’m not talking about exercises that work the muscles and joints, but exercises to physically work your brain. I heard an ad on the TV or radio about seniors learning a foreign language to help them keep their memory sharp. I ask my doc about that and she said it is true. She went on to say that any language-art affects the brain the same way.
I asked about writing, would writing have the same effect as learning a foreign language? The answer was yes. She went on to say that any activity that works the brain actively, like reading, computer games that need strategy, writing, learning languages, puzzles, crosswords, sudoku etc., they all have the same effect. Unlike the muscles in our body that need time to rest and recover between workouts, the brain can and should be worked out every single day for best results.
I like reading and writing. In the past two years I have read about a hundred books. I have written a lot. Somehow, I got the idea to write a novel where the protagonist, the main character has fibromyalgia and has to deal with it through out the story. I wanted the story to have fibromyalgia as a conflict against the main character.
I have spent six months writing the book and completely thrown away one story line and finally found the characters I wanted and then threw out two plot lines until I finally settled on a plot that could go the distance.
You all know how fibro fog does more than affect the memory, I finally had what I wanted, I just needed to complete the rough draft. I had serious doubts I could finish it and so I finally put everything aside and forced myself to do nothing else but wallow in pain and work on completing the novel to the first draft level. I needed a story laid out from start to finish. I needed it as much for a sense of completion. Big projects can be difficult for us fibrochampions. Now that I have finally completed the rough draft, I have a sense of major accomplishment and I feel like I can take the story all the way to publication. That won’t be for a few months, but I feel like I can actually do it.
AND I can say that after about eighteen months of physical therapy for my brain I am remembering things a little better. I still have serious memory issues, but over the last couple of weeks I have noticed a small difference in my memory.
What I want to say to you all is that physical therapy for the brain works and most of us are disabled and have the time to work the brain every day via computer brain games, reading books, especially creatively written books. Writing is good. Languages are good. Eighteen months will pass where you try it or not. Two years, three years, five years, or ten years will pass by, whether you try or not. Everything that counts as physical therapy can be done in bed, on a couch or recliner. Good luck.

36 Reasons Why The Butterfly Is A Great Symbol For Fibromyalgia

36 Reasons Why The Butterfly Is A Great Symbol For Fibromyalgia

For as long as I can remember, the butterfly has been the symbol of Fibromyalgia.

Some say the symbolism of the butterfly for fibromyalgia is because a touch as gentle and soft as the fluttering of a butterflies wing can cause severe pain to a fibro champion.

For parents with fibromyalgia, the gentle soft touch of a baby or a young child is likened to the soft flutter of a butterflies wing and that same loving touch from a baby or child can cause great pain to a parent thus afflicted. That sounds like a good reason to use the butterfly for a fibro symbol. However, there are many other reasons why the butterfly is a great symbol for fibromyalgia.

Butterfly Life Cycle – Four Stages Of Transformation:

(1) Laying of the egg. (2) The egg grows into a caterpillar. As the caterpillar grows it sheds it’s skin a minimum of four times to accommodate the new growth of its increasing size. (3) Then the caterpillar forms itself into a cocoon, a fuzzy sack of rapidly forming growth not visible from the outside. But a metamorphosis (transformation) is happening on the inside. (4) As the adult butterfly emerges from the chrysalis. A winged beautiful butterfly flies away, continuing the circle of life.

We will look at many of the different symbols of the butterfly from around the world and through many cultures. Doing this will show how many of those symbolisms can fit a fibro champion patient.

 

Review the various symbolic parts of the butterfly and you can easily see what makes the Butterfly such a great symbol for fibromyalgia.

Butterfly Symbolism

Accepting Change (Universal)

Aliveness and Brightness (Native American Totem)

Beauty (Christian)

Bliss (Japanese)

Change (Universal)

Circle Of Life (Universal)

Embrace Change ( (Native American Totem)

Finding Joy in life (Native American Totem)

Flying Away With Our Burdens (Christian)

Going through changes and transformations with grace and beauty (Native American)

Grace (Christian)

Granting of Wishes (Native American Indian)

Happiness (American).

Healing (Japanese Symbol)

Hope (Christian)

Immortality (Chinese)

Important Changes (Native American)

Letting go of something bad (Ancient Culture)

Lightness of Being, elevation from the heaviness of tension (Native American)

Migration (Universal)

New Life (Universal)

Personal Transformation (Native American)

Playfulness (Native American Totem)

Profound Change (Native American)

Rebirth (Ancient Culture)

Relaxation (Japanese Symbol)

Resurrection (Christian)

Shedding Of The Old Life (Universal)

Soft As Breath (Universal)

Spirits Of Deceased Loved Ones (Mexican)

Spiritual Growth (Christian)

Stress Reduction (Japanese Symbol)

Support during times of Transition (Native American Totem)

The Soul or Psyche (Ancient Greece)

Transformation (Universal)

Weightlessness (Universal)

A Day In The Life Of Fibromyalgia: Fibro Fog

A Day In The Life Of Fibromyalgia Related To Fibro Fog And Humor

I have, for a number of years been a fan of Psych, the TV show. I heard about my daughter and her boyfriend decide to watch the whole series from the beginning to end on NetFlix. After a while I thought that sounded like a good idea. I spent a lot of years watching Psych and reruns so I was fairly sure I would see a lot of familiar shows.

a_day_in_the_life_fog_humorI started watching Psych a month ago and I was astounded at how many episodes I didn’t remember. I’m now on the eighth and last season of Psych and looking back at all those seasons, all I could clearly remember having previously viewed only about twelve. It was like I was seeing it all over for the first time.

Fibro fog is very common among those of us who suffer from Fibromyalgia. It’s frustrating to forget so many things so often. It can even be detrimental in many cases. I ask myself, “how I can be in so much pain and forget to take my pain MEDs?” That always get’s me.

But on the plus side, I can invest money to buy a DVD and know that over time, it will be like watching it for the first, over and over again. When possible, I like to infuse humor. Sometimes it works and sometimes it doesn’t.

If anyone here enjoys fibro fog raise your hand…no, wait a minute. You might forget to take your hand down.

A Day In The Life Of Fibromyalgia: Memories

A Day In The Life Of Fibromyalgia: Memories

I’ve had fibromyalgia for about thirty-two years, diagnosed for about twelve years. For all of you who have fibromyalgia for any length of time can relate to this, in concept. Probably not the exact situation, but the concept at least.

I was watching a rerun episode of M.A.S.H., it was the one where Klinger tries to get Winchester to invest in the hula hoop and Frisbee. I wonder when and where those two classics came into being. But the memory I had was like a series of video clips of me throwing a Frisbee. I threw the Frisbee in a grocery store parking lot late at night with the parking lot lights on so we could practice skipping the Frisbee on a hard surface. I threw the Frisbee a lot in parks all over. I could competently throw the Frisbee in three or four styles including under my leg.

a_day_in_the_life_of_fibro_frustrating_memories

The fun review of the mental video clips was followed by some despair as I realized, “there is one more thing I can’t do.” Luckily I no longer own any of my Frisbees so I am not tempted.

It’s both fun and sad to have fun memories or recollections from the past. It’s always fun to reflect on the fun of a former life before the new life of disabling fibromyalgia. But it is sad because in many cases, those fun memories will stay as memories and be things we can no longer do.

Troy Wagstaff

 

Fibromyalgia Word Search Puzzle

Fibromyalgia Word Search Puzzle

fibro_word_search!

1. CHRONIC PAIN, 2. FIBROMYALGIA, 3. HEADACHES, 4. SENSITIVITY, 5. IBS, 6. VISION PROBLEMS, 7. ZANAFLEX, 8. TENDER POINTS, 9. MUSCLE SPASMS, 11. FIBRO FOG, 12 CONFUSION, 13. LORTAB, 14. DEPRESSION, 15. ANXIETY, 16. LYRICA, 17. FATIGUE, 18. C 19. INSOMNIA, 20. DOCTOR , 21. HIP PAIN, 22. CLUMSINESS, 23. STIFFNESS, 24. JOINT, 25. CRAMP.

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18 Pain Words With Psychological Meaning

18 Pain Words With Psychological Meaning

I’ve made several posts, well at least two or three that have lists of pain type of symptoms to fibromyalgia. The way this list is different is that theses word have emotion or psychological meaning to them for the sake of diagnosing.

Sharp

Aching

chronic_pain_wordsDull

Tingling

Hot-burning

Tight

Numb

Stabbing

Pounding

Throbbing

Sickening

Cramping

Exhausting

Gnawing

Shooting

Heavy

Tender

Splitting

Look again at the list of description pain words. Doesn’t all pain become exhausting? What about the words heavy, dull and gnawing? Isn’t there a degree of overlap? What about throbbing, aching and pounding? There is a difference in these words but not much. I went to a pain clinic and had to fill out a form where you had to check which descriptive words applied to your pain.

I complained to my PA and he said that those word has a psychological component used to evaluate both the type of pain and the psychological state of mind related to the pain patient. He wouldn’t elaborate any further.

I made this pain in case it helps you in some way communicate your pain to a health care professional. I don’t know if it will mean much but it’s worth considering. Those of us with chronic pain and fibromyalgia can use all the help we can get.

Keep in mind this is posted for your consideration. I am not a health care professional and do not assume any liability. I am passing this on to you for your consideration.

47 Names of Various Pains

47 Names of Various Pains

In honor of Chronic Pain Awareness Month, here are forty-seven terms that identify various types of pain. Wether you have fibromyalgia with fibro fog that makes it hard to think of words, or whether you have other types of chronic pain where the pain so debilitating you can hardly think, here are some terms that you can use to describe when seeking medical attention. I wish I had this list when I first started seeking medical attention eleven years ago.

Ache (Aching)

Acute

Aggravating

Agony (Agonizing)

Battered

Burning

Cramp

Crick

Crumbling

Crushing

Damaging

chronic pain terms

Distress

Dull

Excruciating

Gnawing

Heavy

Hurt

Intense

Malady

Mashing

Mentally Agonizing

Numb (Numbness)

Pulse (ing)

Pulverizing

Piercing

Raging

Scared

Sensation

Searing

Severe

Sharp

Shooting

Sickening

Sore (Soreness)

Squashing

Spasm (Violent spasms)

Splitting

Stabbing

Suffering

Tender

Throb

Tight

Tingling

Tormenting

Torture

Twinge

Vexation

5 Ways How The Bible Helps Us Cope With Chronic Pain and Fibromyalgia

5 Ways How The Bible Helps Us Cope With Chronic Pain, Fibromyalgia And Other Chronic Invisible Illnesses

I am introducing a new thread on the Fibro Champions Blog that takes various verses from the scriptures and applies them to those of us who suffer trials and tribulations due to Anxiety, Chronic Fatigue, Chronic Pain, Depression, Fibromyalgia, Lupus, Lyme Disease, MS, POTS and any other chronic invisible illnesses. Really these little devotionals could apply to anyone who has been victimized. These are Biblical verses that provide teaching, hope, validation and faith in Jesus Christ. Jesus Christ is the foundation upon which all Christianity stands. His teachings can heal and help bear our burden better than any other medical solution, herbal solution or self help solution. But I advocate using the teachings of Jesus in cooperation with the proper use of the miracles of medical science.

1. Even to your old age and gray hairs I am he, I am he who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. Isaiah 46:4 (NIV) This verse is referring to Jesus Christ. It tells us that he will sustain us, will carry us and rescue us in the various times of our needs. Who needs the Savior more than the sinner or those who suffer from health trials, especially those of a chronic illnesses? He made us and he knows us better than we know ourselves. Who better to turn to than our Creator? To sustain us means To support, hold, bear up, bear the weight, bear a burden, and to endure without giving way or yielding. To keep a person from giving way to, as under trial or affliction.

2. He is despised and rejected of men; a man of sorrows, and acquainted with grief: and we hid as it were our faces from him; he was despised, and we esteemed him not. Surely he hath borne our griefs, and carried our sorrows: yet we did esteem him stricken, smitten of God, and afflicted. But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed. Isaiah 53:3-5 (KJV) This verse in Isaiah was a prophecy of what would happen to Jesus Christ when he came to earth to atone for our sins. He did atone for us but he did much more. He bore our griefs, carried our sorrows and through his suffering he can be healed of the consequences of our sins and we can be healed from our infirmities.

3. There hath no temptation taken you but such as is common to man: but God is faithful, who will not suffer you to be tempted above that ye are able; but will with the temptation also make a way to escape, that ye may be able to bear it. 1 Corinthians 10:13 (KJV) This popular verse means that we will not be tempted by sin or tried by tribulation more than what we are able to bear. The creator of us all, knows the limits of each and everyone of us. He knows us better than we know ourselves. The temptations or tribulations that we are called upon to bear may seem like we are being pushed beyond our personal breaking point. But we are not. We must trust God and have faith and hold on tight. With his help, we will make it.

5_ways_the_bible_helps_us_cope_with

4. Consider it pure joy, my brothers and sisters, a whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete, not lacking anything. James 1:2-4 (NIV) To me, this passage of scripture tells me to have joy in my trials of chronic pain, fibro fog and all the other extreme symptoms of fibromyalgia, which is my chronic illness. This also says that the trials and tribulations we go through are designed four our personal growth wether it be in this life or the next.

5. If any of you lack wisdom, let him ask of God, that giveth to all men liberally, and upbraideth not; and it shall be given him. James 1:5 (KJV) This small little verse brings great joy to me in my personal afflictions. It tells me that I can approach God in prayer for anything and my prayers will be heard and answered. But as we know from other verses, the answer to prayers are based on the infinite and eternal wisdom of God.

                    Troy Wagstaff ©

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