Fibro Community

Fibro Community

In the last eleven years when I was officially diagnosed with Fibromyalgia I have seen internet resources grow at an amazing rate. If you take out all the “snake oil” fibro pages there are still a lot of resources at our disposal online. For a long time I have wondered how I could join in the online Fibro community. I have been a member of one of the greatest FaceBook groups on the subject for a long time, Fibro Family Christian Support Group.

Fibro Awareness

Fibro Awareness

For several reasons which I’ll share on a latter post, I added a Fibromyalgia thread to my Blog CallahanWriter.com. It has been picking up steam the last few weeks. I wondered if it was doing any good. CallahanWriter is in a couple of FaceBook Blog groups. She saw a link to a Fibro Awareness post I had recently posted. She sent me this message:

“Good day Troy. I don’t believe in coincidence and Sooooo glad I found your Blog while checking in on Blog Challenge: For the last 2+ years I’ve struggled with symptoms which doctors could not diagnose as ‘Illness’ or knowing what is wrong. After numerous tests done, all of them told me ‘Nothing’s wrong, except for a little depression maybe, Iron deficiency, Spastic colon (developed 2years ago) – some people told me I’m imagining and faking. So I ‘suffered in silence’ Yesterday took a turn for the worse- I decided to take a magazine and lie down on the couch : and there’s an article describing ALL my symptoms and the Name : Fibromyalgi (hoped I spelled correctly :I’m actually Afrikaans speaking) I googled it and it confirmed all my symptoms, AND opened The FB Blog Challenge and there’s your Blog about it! Coincidence? I believe not. Thanks so much for the blog! I’ll be sure to follow it. Going to make appointment with doctor again and show him the articles. I’ll take it then from there. Have an amazing day.” From Jo-Marie . . . (last name omitted for privacy.)

It was exciting to see my effort actually connect with someone in the terrible world of Fibromylagia. If I can turn my 31 years with Fibro to some good, it may well have been worth it.

Troy “Fibroman” Wagstaff

Fibromyalgia is Real – A Poem

Fibromyalgia is Real  – A Poem

Fibromyalgia Is Real

Fibromyalgia Is Real

This is the first fibo-awareness post I have posted from CallahanWriter that I didn’t write. I met Tabatha Schulz on a Fibro group on Facebook Fibro Family Christian Support Group. She agreed to let me post this delightful poem on my blog. Enjoy.

What’s this you say? Fibromyalgia’s not real?
How about you step into my life and just see how real it feels!?
You couldn’t handle it, not even for a day!
This is my life, the pain never goes away. The unending pain, the stiffness is real!
The leg cramps, hands trembling, How does it feel?
My stomach is wrenching, My ears ringing too I’m fatigued and have insomnia… How does that feel to you?

Fibro Poem

Fibro Poem

The IBS has my stomach tied up in knots, and nausea too I wish this would stop!
The pain in my joints is totally insane, Am I even going to be able to walk today?
My skin is on fire, and my muscles burning in pain!
My head hurts and my mind is foggy again.
Dizziness, depression my list could go on… Living with this illness is going to be life long.
So how does it feel to be in my shoes?
Next time be careful the words that you choose… See Fibromyalgia is VERY REAL!
Now you know how our daily life feels.
So be kind and understanding, don’t hurt us with words
We just want understanding and our voices to be heard.

Tabatha Schulz ©

Used by permission

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