Do People Really Live this Early in the Morning?

Do People Really Live this Early in the Morning?

Insomnia is a big problem for many of us who have chronic fatigue, fibromyalgia or chronic pain. For many different reasons we have trouble sleeping. I don’t know about you champions, but before Fibro was officially diagnosed I was an early to bed early to rise kind of guy. Now that I have insomnia, I go to bed late and get up late, most of the time.

When life demands that I wake up early, about fifty percent of the time I can take my MEDs and I can get to bed in time to accommodate an early rise. This morning was one of those days when I got decent sleep in spite four or five interruptions.

how_fibro_changed_me_1I woke up at 8:15 a.m. to take my daughter to work at 9:00 a.m. I had enough time to take my pain MEDs and to rest my back on my heating pad for at least a half hour.

We left at 8:48 a.m. We saw a perky thirty-something woman jogging and wondered how someone could be out so early and be so perky and be jogging all at the same time. My daughter has developed bad sleeping habits along with me and my wife as she grew up. So this is early for her.

We live in a small town and on main street, the main thorough-fare, there were tons of cars on both sides of the road. That’s awfully early for this many people to be out and driving around on a Saturday. It was now 8:52 a.m.

As Kate and I were talking, on the way to the salon, I was reminiscing about the days when I used to go to work as someone else’s employee. I would be at my desk and working by eight in the morning. I realized I would wake up about an hour early to be ready for work. When I started a longer commute I woke up another hour and a half earlier to get ready to get to the bus or train. The last time I did that was about February 2002. I worked for myself for several years before my official diagnosis of fibromyalgia and then later becoming disabled.

As I reflected on that memory on my way home, by now it was 9:04 a.m., I realized how much fibromyalgia has affected my life. All these years later, eight in the morning is sleeping time. When millions of people are hard at work, I am sleeping or just waking up. Sadly, this is just another example of how fibro has, without my consent, changed the way I am forced to live my life.

Inspirational Quotes To Validate Those With Fibromyalgia

Inspirational Quotes To Validate Those With Fibromyalgia, Chronic Pain and Chronic Fatigue.

 

These memes that promote fibro awareness and support for Chronic pain and chronic fatigue are just some of the countless memes on that subject located on a FaceBook group called FibroChampionsBlog at https://www.facebook.com/groups/FibroChampionsBlog

 

These memes are designed to validate those who suffer from the chronic nature of fibromyalgia, chronic pain, chronic fatigue and any other chronic illnesses the have pain or fatigue as a major symptom.

 

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FibroChampions means anyone with chronic fatigue, chronic pain or any other chronic illness where chronic fatigue or pain is part of the symptomology. NEVER GIVE UP, NEVER SURRENDER!

 

 


 

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FibroChampionsBlog

Celebrating Fibromyalgia Champions

This post is to inform you of a Facebook Group called FibrochampionsBlog. It is designed to validate the champions out there who struggle with Fibromyalgia, chronic pain, chronic fatigue and other invisible chronic illnesses. Come here for comfort, peace and understanding.

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This Facebook group about fibromyalgia consist of people who have fibro, fatigue or chronic pain who will help validate your struggles.

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But mainly, the FibrochampionsBlog features motivational, validational and inspirational memes.

 

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Many of these inspirational memes will eventually make it on to this blog but the FibroChampionsBlog provides daily inspirational posting.

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A Day In The Life Of Chronic Fatigue

A Day In The Life Of Chronic Fatigue

A Day In The Life Of Chronic Fatigue

Along with Fibromyalgia, I have Chronic Fatigue. I was reminded about the misery of Chronic Fatigue this past seventeen days. Normally, with my current medication, both for Chronic Fatigue and Insomnia and caffeine pills, I keep my fatigue at a manageable level.

I went to the doctor seventeen days ago and needed a refill for several pills. Some prescriptions were sent electronically and some were handwritten. We talked about the Nuvigil which is what I take in the morning to help me be alert. Sometimes I augment the Nuvigil with some caffeine pills. The doctor forgot to send in my Nuvigil. After the dust had settled, I had all my prescriptions filled, or so I thought. I had two Nuvigil pills left. In a couple of days there was no more Nuvigil and I realized that Nuvigil prescription had not been filled so I called the pharmacy. They’ve been known to mess up on prescriptions. They had no record of the prescription so I called the doctor’s office, they faxed an order over to the pharmacy.

Later that day, I called the pharmacy and they didn’t have it. By then it was too late to call the doctor’s office. Making a long story short, I went through this for several days. I was getting more fatigued and sleepy during the day. My head was clouding up. I was able to do a few things each day, but then by afternoon I started falling asleep on and off for the rest of the day. Add a cloudy tired mind to fibro fog and it’s a real treat. NOT.

chronic_fatigue_nuvigilI had the doctor fax the prescription in a few times and then I had them electronically send it in a few times. Every time I called the pharmacy they didn’t have any record of it. I asked the pharmacy to call and fax the doctor.

This all went on for about a week I thought, maybe ten days. I finally physically went to the doctor’s office to get a physical prescription that I would hand deliver to the pharmacy.

Between the receptionist and the nurse the wires got crossed and the nurse sent it in electronically. While I had access to the nurse, I called the pharmacy and verified by the pharmacist they had received the order. Halelua, the pharmacy had the prescription for Nuvigil in their system! It was filled by the time I got there.

Everyone who has chronic pain, fatigue or fibromyalgia has more than their share of medicine stories, this is nothing new. What I learned about all of this was that after two days of Nuvigil in my system I could see a radical difference in my head. I went from fatigue in my mind and very sleepy too much less sleepy and much less fatigued. It is imperative that we manage out medicine as patients with chronic illnesses.

Also, if I hadn’t had such a cloudy head from the chronic fatigue, I would likely have had this issue resolved much sooner. I thought this whole story took about a week or ten days, but as I sat down to write this post I looked up when my doctor’s anointment was and it turns out that this whole scenario was seventeen days, not ten days. Time seems to slowly float by unaware when you’re in the throes of fatigue or pain.

Three Good Days Is All You Get

Three Good Days Is All You Get

 

This week, three decent days of pain management is all I got. My average pain is around a six to seven. The last three days have been around a four or five. Mostly a four. Of course nothing ever goes completely right. I have had huge bouts of chronic fatigue but the pain has been manageable.

I am frustrated. On the rare chance I get to a point where the pain is tolerable, I get greedy and I want several more days pain-free.

fibrochampionsblog_frustration_no_morethan3good_daysI am also frustrated because when I am having one of those rare episodes of good pain management I get nervous for fear that the pain will blow up, out of no where and it makes me leery as to what I try to do. I’ll take the pain-free days even though they wont last and even though I don’t always takes advantage of a pain free day.

They never include frustration as a symptom of fibromyalgia. But the frustration is as real as the pain itself.

Having said all that, I am grateful for three decently managed semi pain-0free days this past week.

Fibromyalgia – Critical Thinking

Fibromyalgia And Critical Thinking

There is never any shortage of articles or advertisements claiming to help treat fibromyalgia or cure fibromyalgia. Every one of them leads directly or indirectly to money. No one wants to give that information or product away for free.

When you are in chronic pain all the time, day after day, week after week, month after month, year after year, you make for easy prey for some husker that will sell you something or teach you something for a modest fee, of course.

fibro_critical_thinkingIt can become expensive and costly to believe every claim or advertisement you hear about fibromyalgia.

There are people who aren’t selling anything, just passing on information. I do that all the time. I am not selling anything from my blog posts. I do pass along helpful information. Regardless if it is me or someone wanting to sell you something, it is important that even though it sounds like a wonderful thing you need to think it through. Use critical thinking.

For example, whenever I think of anyone either sharing information on nutrition to cure fibromyalgia or selling a book about nutrition that will stop fibromyalgia in its tracks I consider the fact that the latest information over that last three or four years is that fibromyalgia is not an autoimmune illness, it is a neurological illness. If there are certain types of food with certain types of herbs or trace elements, chances are, you can get them in a supplement form and not have to buy a big expensive book to see if it works. Chances are it will never work. If those elements or herbs really cure fibromyalgia, chances are the pharmaceuticals would synthesize it and make it available to everyone.

Don’t get me wrong, I am all for eating as healthy as you can afford. Good nutrition is the secret to overall wellness. If you are disabled and on a strict limited income, you have probably noticed that produce and other healthy food are expensive.

When you are involved in critical thinking you never take anything at face value. You look into it and compare the assertions to your own research. You don’t accept what’s being presented to you without thinking and researching the idea. Don’t read one article an assume it is right for you. Dig in a little and see if after your research and critical thinking, is this right for me?

Troy Wagstaff

Inspire And Validate Those With Fibromyalgia

Inspire And Validate Those With Fibromyalgia

 

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