Is Fibromyalgia Neurological Illness Or Autoimmune Illness

Is Fibromyalgia Neurological Illness Or Autoimmune Illness


With all the anecdotal evidence with Lyrica, Neurotin and anti seizure medicines being used so frequently, I assume fibro is a neurological illness, or an illness with a large neurological component. Those stating that it is an autoimmune illness seems to be making that claim to sell home remedy and herbs.

Top Ten Search Results of The three sets of keywords:

No ad results were used. Only clicked on what appears to be an article on the topic of the keyword entered. The first set of keywords used was “fibromyalgia autoimmune illness” and the second set of keywords was “fibromyalgia Neurological Illness”. This is not a scientific study by any means, but it does create more compelling evidence as to whether fibromyalgia is neurological disorder or an autoimmune disorder.

Conclusion: I read twenty articles and of them comes the following conclusions: Six articles said is was a neurological disease, one article said it was a autoimmune disease. Seven articles said it was not an autoimmune disease. Five articles were inconclusive. Any articles in Purple are recommended as a good read.


More details and the results of the twenty searches are below:

Keywords: Fibromyalgia Autoimmune Illness:

(1) “Is Fibromyalgia Hereditary?

Like other rheumatic diseases, fibromyalgia could be the result of a genetic tendency that’s passed from mother to daughter. Some researchers believe that a person’s genes may regulate the way his or her body processes painful stimuli. These scientists theorize that people with fibromyalgia may have a gene or genes that cause them to react intensely to stimuli that most people would not perceive as painful. Several genes have been found to occur more often in people with fibromyalgia. (WebMD) {Genetic}

(2) Life With an Autoimmune Disease

Also followed a link to another article in Web MD Autoimmune Diseases. Nothing in the article mentions anything about fibromyalgia being an autoimmune disease. {Not Autoimmune Disease}

(3) Autoimmune Disease Fact Sheet.

Are chronic fatigue syndrome and fibromyalgia autoimmune diseases? Chronic fatigue syndrome (CFS) and fibromyalgia (FM) are not autoimmune diseases. But they often have symptoms of autoimmune disease, like being tired all the time and pain.

(WomensHealth.Gov) {Not Autoimmune Disease}

(4) Fibromyalgia. An article from the University of Maryland Medical Center

Comes out and says it resembles some autoimmune diseases, but it is not an autoimmune Disease. This is a recommended read at: <; {Not Autoimmune Disease}

(5) Fibro Related Conditions. No conclusions as to whether fibromyalgia us neurological or an autoimmune illness. {Inconclusive}

(6) Is Fibromyalgia an Autoimmune Disease?

No — or at least, it’s not classified as one at this time.

Because fibromyalgia was once believed to be an arthritis-related condition, and most arthritis is autoimmune, the assumption was that fibromyalgia fit into this category. ChronicFatigue.About.Com {Not Autoimmune Disease}

(7) Is fibromyalgia an autoimmune disorder of endogenous vasoactive neuropeptides?

This article includes references to neurology but conclude that Fibro is likely related to Autoimmune related illnesses; {Autoimmune Disease}

(8) Autoimmune Disorders of the Joints, Muscles, and Nerves

It has not been officially categorized as an autoimmune condition, but it is sometimes put in that category because it frequently occurs in patients with other diseases that cause musculoskeletal symptoms, including rheumatoid arthritis and lupus, which are both autoimmune disorders. {Not Autoimmune Disease}

(9) Developments in the Scientific and Clinical Understanding of Fibromyalgia

FM is common in patients with autoimmune disease and may be the source of many of the symptoms, and much of the disability in these patients. Although FM is generally regarded as a noninflammatory and nonautoimmune disease, some patients have evidence of autoimmunity. {Not Autoimmune Disease}

(10) 7 Things You Should Know About Autoimmune Diseases

Chronic fatigue syndrome and fibromyalgia are not autoimmune diseases. Both are frequently categorized as such, because they share many common symptoms to autoimmune diseases, but they are technically not autoimmune diseases. As such, fibromyalgia and chronic fatigue syndrome may be even less understood by doctors. People with fibromyalgia and chronic fatigue may, however, also have associated autoimmune diseases, according to the AARDA. Huffington Post {Not Autoimmune Disease}

Keywords: Fibromyalgia Neurological Illness :

(1) Fibromyalgia: Is Fibromyalgia Real?

A growing body of information suggests fibromyalgia is a true neurological disorder. {Neurological}

(2) Neurological Signs and Symptoms in Fibromyalgia

Objective: To determine the type and frequency of neurological signs and symptoms in individuals with fibromyalgia (FM).

Conclusions: This blinded, controlled study demonstrated neurological physical examination findings in persons with FM. The FM group had more neurological symptoms than controls, with a moderate correlation between symptoms and signs. These findings have implications for the medical work-up of patients with FM. {Neurological}

(3) The Neurological Connection to Fibromyalgia

If you have fibromyalgia, some of your symptoms might be caused by a neurological disorder such as a cervical spinal cord compression (stenosis) and/or Chiara malformation. It is important for your long term health and for relief of pain, fatigue, and mental function, to rule out neurological conditions as part of your syndrome. If you answer yes to several of the following questions, you should take the initiative to be examined by a neurosurgeon for possible neurological implications.

NFRA.NET {Inconclusive, leans toward neurological}

(4) Fibromyalgia: Understand the Diagnosis Process

Fibromyalgia symptoms include widespread body pain, fatigue, poor sleep and mood problems. But all of these symptoms are common to many other conditions. And because fibromyalgia symptoms can occur alone or along with other conditions, it can take time to tease out which symptom is caused by what problem. To make things even more confusing, fibromyalgia symptoms can come and go over time.

MayoClinic.Org {Inconclusive}

(5) Symptoms of Fibromyalgia

Chronic widespread body pain which can wax and wane is the primary symptom of fibromyalgia. Both men and women with fibromyalgia often experience moderate to extreme fatigue, sleep disturbances, sensitivity to touch, light, and sound, and cognitive difficulties. Many individuals also experience a number of other symptoms and overlapping conditions, such as irritable bowel syndrome, TMJD, lupus and arthritis. Stress often increases symptoms of fibromyalgia. {Inconclusive}

(6) A Neurologist’s Approach

As a neurologist, I often use anti-epileptic drugs (AEDs) to help control pain. There appears to be an overlapping neurological system involved in epilepsy, depression, and pain, because similar medications seem to exert an impact on those same systems. AEDs are often good at relieving migraines and they are effective at reducing burning pain. However, their ability to treat the dull, achy, widespread pain of fibromyalgia is not easy to predict. I start a person on one AED, and if it helps, but the pain is still bad, I will usually add a second AED with a different mechanism of action. {Inconclusive, leans toward neurological}

(7) Numbness, insomnia, constant pain and fatigue… Just some of the symptoms of a debilitating illness that affects 1.8m Britons

It is an illness that can lead to excruciating pain at points all over the body, numbness, crushing fatigue coupled with insomnia, and an inability to handle even mild changes in temperature or light. Fibromyalgia is a neurological condition thought to affect 1.8 million Britons to varying degrees, and experts do not know what causes it. {Neurological}

(8) Is Fibromyalgia a Neurological Disorder

Fibromyalgia is diagnosed by the presence of its primary symptom which is widespread muscle and joint pain throughout the body. “The diagnosis of Fibromyalgia is given to a person when they have this unexplainable pain in various parts of their body.” What is Fibromyalgia That’s a good question and since no one knows exactly what causes this disease there is no definitive test for it. {Neurological}

(9) Neurologic Signs Common With Fibromyalgia

Fibromyalgia isn’t all in your head, new research suggests. In a study, researchers found that people with fibromyalgia were more likely than those without the chronic pain condition to have poor balance, tingling and weakness in the arms and legs, and other “neurologic” signs and symptoms. The new findings, reported in the latest issue of Arthritis and Rheumatism, support a growing body of literature suggesting that the condition is real and also support the possibility that a “neuroanatomical” cause may underlie fibromyalgia. These observations, Watson told Reuters Health, underscore the need for “careful neurological examinations in all fibromyalgia patients, particularly those with neurological complaints.” Watson cautioned that this study does not confirm a neuroanatomical basis for fibromyalgia and that much more work is necessary before this can be known with certainty. SOURCE: Arthritis and Rheumatism, September 2009. {Neurological}

(10) Fibromyalgia

Its exact cause is unknown but is believed to involve psychological, genetic, neurobiological and environmental factors. There is evidence that environmental factors and certain genes increase the risk of developing fibromyalgia; these same genes are also associated with other functional somatic syndromes and major depressive disorder The central symptom of fibromyalgia, namely widespread pain, appears to stem from neurochemical imbalances and the activation of inflammatory pathways in the brain which results in abnormalities in pain-processing. The brains of people with fibromyalgia show functional and structural differences from those of people without fibromyalgia, but it is unclear whether the brain anomalies cause fibromyalgia symptoms, or are the product of an unknown underlying common cause. Some research suggests that these brain anomalies may be the result of childhood stress, or prolonged or severe stress.

Wikipedia {Neurological}

Conclusion – What type of illness is Fibromyalgia?

Out of the top Ten sources for each pair of keywords, those articles states the any of the four or none of the four was the type of disease fibromyalgia is.

Neurological: 6

Autoimmune: 1

Arthritis Related:

Genetic: 1

Not Neurological:

Not Autoimmune: 7

Not Arthritis Related:

Not Genetic:

Inconclusive: 5

Eight Anger Relationships With Fibromyalgia

Eight Anger Relationships With Fibromyalgia

One thing I’ve noticed in the almost thirty-two years of having fibromyalgia is that there are a lot of anger issues associated with the illness. I’ve noticed it in my own life, and in the lives of hundreds of people I have been in contact with that have fibromyalgia themselves.

What are the ways fibromyalgia and anger are connected?


1. Anger toward those who doubt or deny the validity of fibromyalgia.

2. Anger toward all those health care professionals who didn’t diagnose fibromyalgia, who should have known better.

3. Anger at fibromyalgia itself, for the pain and the limitations it causes.

4. Anger at people you thought were your friends, but have since disappeared because of fibromyalgia.

5. Anger at the medical establishment for not taking seriously the plight of fibromyalgia.

6. Anger at the needless suffering of pain from fibromyalgia.

7. Angry toward ourselves for having fibromyalgia.

8. Angry at God or the Universe for letting have fibromyalgia.

As to what the relationship is between fibromyalgia and anger seems to be caused by fibromyalgia. Anger is an emotion and many emotions cause stress and stress aggravate fibromyalgia.

My question is to those of you who suffer from fibromyalgia. Are you angry in relation to it? If so what are you angry about?

I’d like to add it to my list. I plan and writing a Part 2 of this, for my own benefit and maybe it can help someone else with fibro. I think some or a lot of this anger can be dealt with by forgiveness. But that is easier said than done when you get right down to it.

Over 50 Fibromyalgia Sites

Over 50 Informational Links To Fibromyalgia Web Sites

These are quality fibromyalgia sites I have found to be interesting as I have researched fibromyalgia over the years. It is my no means a complete list.  This page is dedicated to all those around the world who suffer from Fibromyalgia and are looking for answers.  These Fibromyalgia links will provide a quality source of information on the scientific and research side of Fibromyalgia. There are also links to other aspects of Fibromyalgia such as exercise and online support groups.  To the best of my ability there will be no links to snake oil remedies or links to hucksters trying to make money off of those who suffer the pain and fog of Fibromyalgia. As more quality web sites come to my attention they will be added to this list. 


  1. Fibromyalgia and Social Security
  2. Fibromyalgia Awareness
  3. Fibromyalgia Treating The Hidden Illness
  4. Fibromyalgia Support Groups Offer Hope
  5. Fibromyalgia.Com
  6. Fibromyalgia Mystery Finally Solved
  7. The Medicine Your Doctor Never Told You About But Should Have
  8. New evidence proves chronic fatigue really is a biological disorder
  9. Sensory Distress: The Other Side of Fibromyalgia
  10. The History Of Fibromyalgia
  11. Better Living With Fibromyalgia
  12. Major Fibromyalgia Discovery
  13. Dealing With Trigger Points
  14. The Spoon Theory
  15. Unique Brain Connectivity In Fibromyalgia
  16. Fibro Champions Blog
  17. Fibromyalgia: Life Long Central Nervous System Disorder
  18. Fibromyalgia Symptoms
  19. FibroModer Blog Directoy  
  20. Simmaron Research Scientifically Redefining ME/CFS
  21. Intrinsic Brain Connectivity in Fibromyalgia is Associated with Chronic Pain Intensity 
  22. Unique Brain Connectivity in Fibromyalgia
  23. The 48-Hour Recovery Period in Fibromyalgia & Chronic Fatigue Syndrome 
  24. Brain Fog/Fibro Fog in Fibromyalgia & Chronic Fatigue Syndrome
  25. Chronic Fatigue Syndrome
  27. American Chronic Pain Association
  28. Fibro Stretches and Trigger Points
  29. Fibromyalgia Awareness
  30. Over Eighty Symptoms Of Fibromyalgia
  31. Blood Tests and Fibromyalgia
  32. The Brain And Nervous System In Fibromyalgia   FIBRO FOG
  33. Fibro And Core Temperature
  34. Mayo Clinic Fibromyalgia
  35. Patients Like Me
  36. Fibro – Chronic Pain
  37. National Institute of Arthritis Musculoskeletal and Skin Disease – Fibromyalgia 
  38. National Fibromyalgia Research Association
  39. American Fibromyalgia Syndrome Association
  40. Fibromyalgia Network
  41. Fibromyalgia Symptoms
  42. National Fibromyalgia Partnership
  43. Latest On Fibromyalgia
  44. Chronic Pain Website
  45. Sensitive Receptors Excessive Pain
  46. Fixing Fibro…Rem Sleep
  47. What Some Fibro Patients Are Doing To Medically Treat The Symptoms Of Fibromyalgia
  48. Immune System
  49. Is Fibro Real?
  50. I Got Dressed In Real Clothes Today
  51. Fibro & Auto Immune Christian Purple Oasis~”Secret Group”
  52. INVISIBLE DISEASES .com* Support Chronic Fatigue Syndrome /ME, Fibro & Lyme
  53. Fibro Exercise: Walking, Yoga, Stretching etc
  54. Exercises For Fibro
  55. 10 Exercises For People In Pain
  56. About Fibro Exercising From the Mayo Clinic

5 Ways To Have Fun With Fibromyalgia

Five Ways To Have Fun With Fibromyalgia

I have recently written several articles on the downside of fibromyalgia. Makes sense right? Can any fun come from having a terrible, disabling illness like fibromyalgia? The answer is typically no, that is unless you make an attempt to have some fun within the disabling limitations of fibromyalgia, chronic pain or chronic fatigue.

If you can some how manage add some fun to your life you will likely feel less depressed, maybe even feel a degree of happiness and a little contentment. It is easy to watch life pass you by as you lay in bed, the couch or your favorite recliner.

Also if you try to have some fun within your limitations it can help keep your mind be active in a positive way, and hopefully pull some energy away from feeling sorry for yourself and use that energy in giving your life some meaning outside of the crippling pain and other symptoms of fibromyalgia.

1. Read – Watching videos or TV is a passive activity for your mind. Watching TV and Videos isn’t the worse thing you can do and it has its place in this list which we will touch on later. Reading books is an engaging activity for your mind and stimulates your mind while you’re having fun being caught up in an engaging story. Reading is also like exercising your brain but it is an enjoyable event.

2. Listening To Your Favorite Music – While this may seem like a passive way to use your mind, music is different in that it stimulates memories and emotions. I can listen to certain songs that immediately bring up memories that are both good and bad. Don’t listen to the songs with bad memories attached.

3. Sing along With Your Favorite Music – As you are listening to your favorite music sing along to it. It doesn’t matter if you are bedfast or not, you can sing to your favorite music. Watch out though, in the middle of one of your favorite songs you might hear your self really getting caught up in the music and belting out the words like a rock star. That’s even better. If you need to, lock the door and let it roar.

5 ways to have fun

4. Watch TV and Movies – Besides trying to learn ways to have fun within the constraints of your chronic illness, part of the point of this list is to get your mind off of your illness, even if it is only for ten or twenty minutes. Watch exciting TV or videos that catch your attention and get you hooked. This can give you motivation each day to watch the next part in a series of movies or a TV series. I know I said that TV and movie watching is a passive brain activity, but it can also be fun. But don’t just flip the TV on for background noise. Watch comedy’s that make you laugh out loud. Watch documentaries on your favorite subjects, watch the TV with a purpose.

5. Find A Doable Hobby – This idea can be a little more difficult because of the limitations that fibromyalgia, chronic pain and chronic fatigue place on your body. But it’s not impossible. Maybe bird watching might be fun. Rather than hiking in the woods to look for bird you take a passive approach and find a comfortable folding chair and site in your back yard or in a park and watch for bird. The first hobby I picked up was to study World War II. I’ve always been a history buff so I picked up a book that had a general overview of the war, read it, and was hooked on wanting to learn more and more. I would often take a history book with me to read in doctors offices. It was interesting and helped pass the time of day.

What things have you come up with that help occupy your time in a meaningful way? What hobbies can you participate in? Let us know in the comments below.

“I’ve got a large list of other things that you can do to have fun while suffering from fibromyalgia or chronic pain I’ll post later on. Make sure you are a follower so you won’t miss the next several installments.

18 Pain Words With Psychological Meaning

18 Pain Words With Psychological Meaning

I’ve made several posts, well at least two or three that have lists of pain type of symptoms to fibromyalgia. The way this list is different is that theses word have emotion or psychological meaning to them for the sake of diagnosing.



















Look again at the list of description pain words. Doesn’t all pain become exhausting? What about the words heavy, dull and gnawing? Isn’t there a degree of overlap? What about throbbing, aching and pounding? There is a difference in these words but not much. I went to a pain clinic and had to fill out a form where you had to check which descriptive words applied to your pain.

I complained to my PA and he said that those word has a psychological component used to evaluate both the type of pain and the psychological state of mind related to the pain patient. He wouldn’t elaborate any further.

I made this pain in case it helps you in some way communicate your pain to a health care professional. I don’t know if it will mean much but it’s worth considering. Those of us with chronic pain and fibromyalgia can use all the help we can get.

Keep in mind this is posted for your consideration. I am not a health care professional and do not assume any liability. I am passing this on to you for your consideration.

47 Names of Various Pains

47 Names of Various Pains

In honor of Chronic Pain Awareness Month, here are forty-seven terms that identify various types of pain. Wether you have fibromyalgia with fibro fog that makes it hard to think of words, or whether you have other types of chronic pain where the pain so debilitating you can hardly think, here are some terms that you can use to describe when seeking medical attention. I wish I had this list when I first started seeking medical attention eleven years ago.

Ache (Aching)



Agony (Agonizing)








chronic pain terms










Mentally Agonizing

Numb (Numbness)

Pulse (ing)











Sore (Soreness)


Spasm (Violent spasms)












Top Five Symptoms Of Fibromyalgia

Top Five Symptoms Of Fibromyalgia

Over the past week I sent out several requests for fibro patients to list the five worst symptoms they have with fibromyalgia. After tabulating them here are the results. There is a list of seventeen symptoms. The first ten are not surprising. The top five are, to me a little surprising. I do have vision related symptoms but I was surprised that it was mentioned as much as it was and that it was bad enough to be in the top five.

I am a little surprised the sensitivities weren’t a little higher and I am really surprised migraines wasn’t a lot higher and that there was only one complaint of migraines and no complaints of headaches.

Take a look at these symptoms and see how they compare with your top five symptoms. Feel free to tell me what your top five fibro symptoms are.

5 tops fibro syptoms

1 Pain – 17

2 Fog – 12

3 Fatigue – 10

4 Sleep Issues – 7

5 Vision Issues – 5

6 Stiffness – 4

7 IBS – 3

8 Flu like symptoms – 2

9 Noise Sensitivity – 2

10 UV Light Sensitivity – 2

11 Clumsy – 2

12 Light Sensitivity

13 Migraines

14 Neuropathy

15 Muscle cramps/spasms

16 Nausea

17 Ringing in ears

5 Ways How The Bible Helps Us Cope With Chronic Pain and Fibromyalgia

5 Ways How The Bible Helps Us Cope With Chronic Pain, Fibromyalgia And Other Chronic Invisible Illnesses

I am introducing a new thread on the Fibro Champions Blog that takes various verses from the scriptures and applies them to those of us who suffer trials and tribulations due to Anxiety, Chronic Fatigue, Chronic Pain, Depression, Fibromyalgia, Lupus, Lyme Disease, MS, POTS and any other chronic invisible illnesses. Really these little devotionals could apply to anyone who has been victimized. These are Biblical verses that provide teaching, hope, validation and faith in Jesus Christ. Jesus Christ is the foundation upon which all Christianity stands. His teachings can heal and help bear our burden better than any other medical solution, herbal solution or self help solution. But I advocate using the teachings of Jesus in cooperation with the proper use of the miracles of medical science.

1. Even to your old age and gray hairs I am he, I am he who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. Isaiah 46:4 (NIV) This verse is referring to Jesus Christ. It tells us that he will sustain us, will carry us and rescue us in the various times of our needs. Who needs the Savior more than the sinner or those who suffer from health trials, especially those of a chronic illnesses? He made us and he knows us better than we know ourselves. Who better to turn to than our Creator? To sustain us means To support, hold, bear up, bear the weight, bear a burden, and to endure without giving way or yielding. To keep a person from giving way to, as under trial or affliction.

2. He is despised and rejected of men; a man of sorrows, and acquainted with grief: and we hid as it were our faces from him; he was despised, and we esteemed him not. Surely he hath borne our griefs, and carried our sorrows: yet we did esteem him stricken, smitten of God, and afflicted. But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed. Isaiah 53:3-5 (KJV) This verse in Isaiah was a prophecy of what would happen to Jesus Christ when he came to earth to atone for our sins. He did atone for us but he did much more. He bore our griefs, carried our sorrows and through his suffering he can be healed of the consequences of our sins and we can be healed from our infirmities.

3. There hath no temptation taken you but such as is common to man: but God is faithful, who will not suffer you to be tempted above that ye are able; but will with the temptation also make a way to escape, that ye may be able to bear it. 1 Corinthians 10:13 (KJV) This popular verse means that we will not be tempted by sin or tried by tribulation more than what we are able to bear. The creator of us all, knows the limits of each and everyone of us. He knows us better than we know ourselves. The temptations or tribulations that we are called upon to bear may seem like we are being pushed beyond our personal breaking point. But we are not. We must trust God and have faith and hold on tight. With his help, we will make it.


4. Consider it pure joy, my brothers and sisters, a whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete, not lacking anything. James 1:2-4 (NIV) To me, this passage of scripture tells me to have joy in my trials of chronic pain, fibro fog and all the other extreme symptoms of fibromyalgia, which is my chronic illness. This also says that the trials and tribulations we go through are designed four our personal growth wether it be in this life or the next.

5. If any of you lack wisdom, let him ask of God, that giveth to all men liberally, and upbraideth not; and it shall be given him. James 1:5 (KJV) This small little verse brings great joy to me in my personal afflictions. It tells me that I can approach God in prayer for anything and my prayers will be heard and answered. But as we know from other verses, the answer to prayers are based on the infinite and eternal wisdom of God.

                    Troy Wagstaff ©

Car Crashes Can Cause Stress For Chronic Pain and Fibromylagia Patients

Car Crash Stress Fibro

A Day In The Life Of Fibromyalgia

Anyone who has had fibromyalgia for any great length of time has to come to terms that stress of any kind can be a major trigger in a fibro flare up. Life may be good with a whole week of fibro pain levels at a constant four and then a major stressor happens and the fibro pain scale jumps through the roof.

It’s taken me about a week to write about it because it’s only been the last few days I have come back off that flare up.

It was about 8:00 a.m. and I got a call from my middle daughter who called me on the phone. She said, “Dad, I need you to come and pick me up because I’ve been in a car wreck.”


“Are you alright?”

“I’m not hurt but I think my car is totaled. There are other cars in the wreck.”

“Are you sure your alright?” By now I am making sure I have my keys and wallet. My wife is asking about the conversation. I say Brit has been in a car wreck, she says she’s ok.”

“What happened, I ask”?

“I got rear-ended.”

“Where are you at?”

“I’m on the off ramp on Center St.”

“I am on my way.”

“I’ll call you when I am on the road.”

The whole time she is emotional on the phone.

I told my wife, “Britt has been in a car wreck, she was rear-ended going off I-15 onto Center St., I am on my way. Have your mother take you to work.”

My wife replies with “OK, text me when you know hat’s going on.”


I am worried and scared for my daughter, but I feel kind of normal. Experience has taught me that the feeling or being normal won’t last. But I know this is not a time to be concerned with that.

I am on my way. I call her to check on her and she’s filling out a police report. She’s emotional, but trying hard to keep it together. It seems like forever, but I am there in fifteen minutes. Put my hazard lights on and get out of the car. I see highway Patrol vehicles on the far left lane and on the off ramp on the far right side of the interstate where I am at. I see my girl in a car with a witness to the crash. I come up to her and the good Samaritan rolls down the window and I ask her how she’s doing?

She says she is starting to feel pain in her neck. She has had a bad back for five years since she last got rear-ended.

A tow truck shows up so I get all of her personal belongings out and put them in my vehicle. I talk to the trooper and asked him how the girl who rear-ended my daughter is on the far side of the Interstate. He shook his head and said, “I don’t know, that’s what we are investigating.”

“Will that girl be sited,” I ask.

“We’re still investigating, but yes, she is responsible for the accidents.”

“My daughter is starting to hurt. If you can be done with her in five minutes fine, but otherwise I need to take her to the ER.”

“That’s fine, ” he said, “I can drop off the information to you there if I need to.”

I go back to my daughter and ask her if there is anything special that needs to be removed from her car. She rattled off a list of things. I had got most of it, but went back and found a few more things. This time I take a big look at what happened on the inside of her car. The force of the impact broke the driver’s side seat. Jammed all the doors, but the front passenger side. I am amazed at the extent of internal body damage to the car.

The trooper comes up to me and said, “we are going to meet at the Chevron station off of Center street to clear up the emergency vehicles and then I’‘ll print out a report for your insurance. Unless you need to go to the hospital.”

“We can wait,” I said.

I shake the hand of the good Samaritan and thanked him with gratitude.

We had our accident report and left for the ER. She had a CT-Scan and a large series of X-rays and all the was wrong was a bad case of whiplash.

She wanted to go see her car that had gotten her through a large portion of college and to say goodbye. We checked for a few more things and we got pictures of the car.

We got her prescriptions filled. Got her an appointment that day with the chiropractor and a week later she is still under doctor’s care but she is healing and doing well.

I rose to the occasion, thanks to adrenaline. That afternoon when I knew my daughter was comfortable and was resting I relaxed and the adrenaline wore off quickly. It took about five days to come off of that flare up that followed. I was in such shock and in so big of a hurry I forgot to take my fibro emergency go bag. I did have the presence of mind to grab the book I was currently reading. Didn’t ever use it. I was amazed how fast we got in and out of the ER.

fibro_car_crash_stressUnexpected things happen to those of us with Chronic pain and fibromyalgia. Life goes on even if we are sick or in pain. We don’t have much choice but to deal with it, taking it day by day. I was able to rise to the occasion, but I paid for it for five days of worse than normal pain and malaise. It was worth it. Just another day with fibromyalgia and the consequences of the terrible disease.

10 Things Everyone Should Know About People With Chronic Pain

10 Things Everyone Should Know About People With Chronic Pain

This is an open letter to anyone who knows someone with a chronic pain illness. From the perspective of someone with a Chronic Pain illness, these are ten things we want you to know about those of us, who suffer from anyone of a number of chronic pain diseases.

1. Why We Cancel Social Engagements:

People with Fibromyalgia and other chronic pain illnesses, often suffer anguish from having to cancel plans so frequently. We don’t want to, but we do, that is if we are brave enough to make plans in the first place. Think for a minute, what it might be like to have a chronic pain illness. To a large degree you become a shut in. When you move around with chronic pain, it sucks the energy out of you. Also, the more you move the more it hurts. When you’re a shut in you are willing to do whatever it takes to get out and be social. But sometimes you just can’t. We’re sorry, more than you know. All we ask is for patience and understanding.

2. Chronic Pain Is More Than Just An illness:

Saying that fibromyalgia or any other chronic pain condition is an illness implies that there is a cure or that we should feel better after a couple of weeks of medicine and therapy. The important thing to remember is the key word chronic. The word “Chronic” means “persisting for a long time or constantly recurring.” Chronic pain is not like having the dreaded achy flu with a fever for a week that suddenly disappears one morning when you wake up and you feel just fine. We wish it worked that way. We pray to wake up some morning to find our chronic pain gone and have a lot of energy. But the word chronic means that it will persist for a very long time, likely forever, especially it your chronic pain has a more detailed diagnosis like fibromyalgia, chronic fatigue or neuropathy.

3. How Are We Doing?

If you are kind enough to ask “how are you doing?” or “how are you feeling?” and we act kind of funny about answering you, it’s because it’s complicated, or because we wonder, do you really want to know? Or because we get tired of saying we feel lousy. Don’t be easily deceived. We may say “we are fine.” We may be lying or we may be truthful. It’s hard to say because is depends on the time of day when you ask that question. Our condition can vary from one hour to the next.

4. How Can You Help Us?

If you’re interested in helping us, it can literally be as simple as sincerely validating us. Be genuinely sincere when you say you understand. We can spot phonies a mile a way. We would like to have your honest acceptance of who we are with a chronic pain condition and be patient with us.


5. Important Things to Understand About Us

Things can change hour by hour with for those of us who suffer from chronic pain. So please bare with us.

We are victims, we didn’t ask for a chronic pain disease, who in their right mind would?

We are as independent as we can possibly be. It may not look like it considering how much help we sometimes need. If you should happen to see a smile on our face, please consider how much energy and effort it is taking. We would give anything to not be sick with chronic pain. Anyone who enjoys pain is insane. It may not look like it, but we try to live the best, the most normal life we can. It may not look like it but we are. We need a lot of sleep because not only does pain hurt, it wears us out and makes us tired.

6. Chronic Pain Illnesses’ Are Real

Most chronic illnesses now have an identifiable name like Fibromyalgia, Chronic Fatigue, Neuropathy, Trigeminal Neuralgia, IBD, IBS, TMJ, and Gout to name a few. Just because we don’t look sick doesn’t mean we’re not sick. We can feel crippling pain and hopelessness and look fine on the outside.

7. Don’t Judge Us

You may see us clean out our car or do a load of laundry and think we are faking a chronic pain illness. The truth of it is that the majority of our time and for some, all of their time is spent in pain. But most of us have a few good days and because we are not lazy we try and do as much as can of our few good days. We have to pace ourselves on good days so that we don’t have to pay extra on bad days. Some times we choose to over due it on good days because we just want a quick taste of being normal. We know we will pay a price for it the next day but sometimes we think it is worth it. Another point to make is just because you haven’t heard of all the pain related illnesses doesn’t mean they don’t exists.

8. Sometimes It’s Hard to Explain How We Feel

There are so many painful sensations and accompanying emotions and brain fog it’s often hard to put how we feel exactly into words. But trust us when we say, we feel terrible physically and emotionally.

9. Medication

There is a plethora of medication and pain relievers out there as options to manage our pain. But even with all the proper medication we still feel pain. Pain meds don’t take away all the pain. Sometimes the best we can hope for is a degree of relief, but seldom, if ever, does medication take away all the pain.

10. We Are Not Hypochondriacs

We are not making this chronic pain stuff up. There are some people that really are hypochondriacs but if you think we are, take a look in our medicine cabinet or observe us for a few days and see just how fake are illness isn’t.


We don’t want pity, and we don’t want to be looked down upon. We want respect, validation and trust. We really are sick even though we don’t look sick. Ask yourself, who in their right mind would want to be sick with chronic pain for their whole life. We don’t.

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