Is Fibromyalgia Neurological Illness Or Autoimmune Illness

Is Fibromyalgia Neurological Illness Or Autoimmune Illness

Assumption:

With all the anecdotal evidence with Lyrica, Neurotin and anti seizure medicines being used so frequently, I assume fibro is a neurological illness, or an illness with a large neurological component. Those stating that it is an autoimmune illness seems to be making that claim to sell home remedy and herbs.

Top Ten Search Results of The three sets of keywords:

No ad results were used. Only clicked on what appears to be an article on the topic of the keyword entered. The first set of keywords used was “fibromyalgia autoimmune illness” and the second set of keywords was “fibromyalgia Neurological Illness”. This is not a scientific study by any means, but it does create more compelling evidence as to whether fibromyalgia is neurological disorder or an autoimmune disorder.

Conclusion: I read twenty articles and of them comes the following conclusions: Six articles said is was a neurological disease, one article said it was a autoimmune disease. Seven articles said it was not an autoimmune disease. Five articles were inconclusive. Any articles in Purple are recommended as a good read.

fibro_neuro_auto

More details and the results of the twenty searches are below:

Keywords: Fibromyalgia Autoimmune Illness:

(1) “Is Fibromyalgia Hereditary?

Like other rheumatic diseases, fibromyalgia could be the result of a genetic tendency that’s passed from mother to daughter. Some researchers believe that a person’s genes may regulate the way his or her body processes painful stimuli. These scientists theorize that people with fibromyalgia may have a gene or genes that cause them to react intensely to stimuli that most people would not perceive as painful. Several genes have been found to occur more often in people with fibromyalgia. (WebMD) {Genetic}

(2) Life With an Autoimmune Disease

Also followed a link to another article in Web MD Autoimmune Diseases. Nothing in the article mentions anything about fibromyalgia being an autoimmune disease. {Not Autoimmune Disease}

(3) Autoimmune Disease Fact Sheet.

Are chronic fatigue syndrome and fibromyalgia autoimmune diseases? Chronic fatigue syndrome (CFS) and fibromyalgia (FM) are not autoimmune diseases. But they often have symptoms of autoimmune disease, like being tired all the time and pain.

(WomensHealth.Gov) {Not Autoimmune Disease}

(4) Fibromyalgia. An article from the University of Maryland Medical Center

Comes out and says it resembles some autoimmune diseases, but it is not an autoimmune Disease. This is a recommended read at: <http://umm.edu/health/medical/reports/articles/fibromyalgia&gt; {Not Autoimmune Disease}

(5) Fibro Related Conditions. No conclusions as to whether fibromyalgia us neurological or an autoimmune illness. Health.com {Inconclusive}

(6) Is Fibromyalgia an Autoimmune Disease?

No — or at least, it’s not classified as one at this time.

Because fibromyalgia was once believed to be an arthritis-related condition, and most arthritis is autoimmune, the assumption was that fibromyalgia fit into this category. ChronicFatigue.About.Com {Not Autoimmune Disease}

(7) Is fibromyalgia an autoimmune disorder of endogenous vasoactive neuropeptides?

This article includes references to neurology but conclude that Fibro is likely related to Autoimmune related illnesses http://www.ncbi.nlm.nih.gov/pubmed/15082086&gt; {Autoimmune Disease}

(8) Autoimmune Disorders of the Joints, Muscles, and Nerves

It has not been officially categorized as an autoimmune condition, but it is sometimes put in that category because it frequently occurs in patients with other diseases that cause musculoskeletal symptoms, including rheumatoid arthritis and lupus, which are both autoimmune disorders. Everydayhealth.com {Not Autoimmune Disease}

(9) Developments in the Scientific and Clinical Understanding of Fibromyalgia

FM is common in patients with autoimmune disease and may be the source of many of the symptoms, and much of the disability in these patients. Although FM is generally regarded as a noninflammatory and nonautoimmune disease, some patients have evidence of autoimmunity. Medscape.com {Not Autoimmune Disease}

(10) 7 Things You Should Know About Autoimmune Diseases

Chronic fatigue syndrome and fibromyalgia are not autoimmune diseases. Both are frequently categorized as such, because they share many common symptoms to autoimmune diseases, but they are technically not autoimmune diseases. As such, fibromyalgia and chronic fatigue syndrome may be even less understood by doctors. People with fibromyalgia and chronic fatigue may, however, also have associated autoimmune diseases, according to the AARDA. Huffington Post {Not Autoimmune Disease}

Keywords: Fibromyalgia Neurological Illness :

(1) Fibromyalgia: Is Fibromyalgia Real?

A growing body of information suggests fibromyalgia is a true neurological disorder.

http://patients.aan.com/resources/neurologynow/index.cfm?event=home.showArticle&id=ovid.com%3A%2Fbib%2Fovftdb%2F01222928-200905050-00024 {Neurological}

(2) Neurological Signs and Symptoms in Fibromyalgia

Objective: To determine the type and frequency of neurological signs and symptoms in individuals with fibromyalgia (FM).

Conclusions: This blinded, controlled study demonstrated neurological physical examination findings in persons with FM. The FM group had more neurological symptoms than controls, with a moderate correlation between symptoms and signs. These findings have implications for the medical work-up of patients with FM.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2769083/ {Neurological}

(3) The Neurological Connection to Fibromyalgia

If you have fibromyalgia, some of your symptoms might be caused by a neurological disorder such as a cervical spinal cord compression (stenosis) and/or Chiara malformation. It is important for your long term health and for relief of pain, fatigue, and mental function, to rule out neurological conditions as part of your syndrome. If you answer yes to several of the following questions, you should take the initiative to be examined by a neurosurgeon for possible neurological implications.

NFRA.NET {Inconclusive, leans toward neurological}

(4) Fibromyalgia: Understand the Diagnosis Process

Fibromyalgia symptoms include widespread body pain, fatigue, poor sleep and mood problems. But all of these symptoms are common to many other conditions. And because fibromyalgia symptoms can occur alone or along with other conditions, it can take time to tease out which symptom is caused by what problem. To make things even more confusing, fibromyalgia symptoms can come and go over time.

MayoClinic.Org {Inconclusive}

(5) Symptoms of Fibromyalgia

Chronic widespread body pain which can wax and wane is the primary symptom of fibromyalgia. Both men and women with fibromyalgia often experience moderate to extreme fatigue, sleep disturbances, sensitivity to touch, light, and sound, and cognitive difficulties. Many individuals also experience a number of other symptoms and overlapping conditions, such as irritable bowel syndrome, TMJD, lupus and arthritis. Stress often increases symptoms of fibromyalgia. fmcpaware.org {Inconclusive}

(6) A Neurologist’s Approach

As a neurologist, I often use anti-epileptic drugs (AEDs) to help control pain. There appears to be an overlapping neurological system involved in epilepsy, depression, and pain, because similar medications seem to exert an impact on those same systems. AEDs are often good at relieving migraines and they are effective at reducing burning pain. However, their ability to treat the dull, achy, widespread pain of fibromyalgia is not easy to predict. I start a person on one AED, and if it helps, but the pain is still bad, I will usually add a second AED with a different mechanism of action. {Inconclusive, leans toward neurological}

(7) Numbness, insomnia, constant pain and fatigue… Just some of the symptoms of a debilitating illness that affects 1.8m Britons

It is an illness that can lead to excruciating pain at points all over the body, numbness, crushing fatigue coupled with insomnia, and an inability to handle even mild changes in temperature or light. Fibromyalgia is a neurological condition thought to affect 1.8 million Britons to varying degrees, and experts do not know what causes it. http://www.dailymail.co.uk {Neurological}

(8) Is Fibromyalgia a Neurological Disorder

Fibromyalgia is diagnosed by the presence of its primary symptom which is widespread muscle and joint pain throughout the body. “The diagnosis of Fibromyalgia is given to a person when they have this unexplainable pain in various parts of their body.” What is Fibromyalgia That’s a good question and since no one knows exactly what causes this disease there is no definitive test for it. Disabled-World.com/ {Neurological}

(9) Neurologic Signs Common With Fibromyalgia

Fibromyalgia isn’t all in your head, new research suggests. In a study, researchers found that people with fibromyalgia were more likely than those without the chronic pain condition to have poor balance, tingling and weakness in the arms and legs, and other “neurologic” signs and symptoms. The new findings, reported in the latest issue of Arthritis and Rheumatism, support a growing body of literature suggesting that the condition is real and also support the possibility that a “neuroanatomical” cause may underlie fibromyalgia. These observations, Watson told Reuters Health, underscore the need for “careful neurological examinations in all fibromyalgia patients, particularly those with neurological complaints.” Watson cautioned that this study does not confirm a neuroanatomical basis for fibromyalgia and that much more work is necessary before this can be known with certainty. SOURCE: Arthritis and Rheumatism, September 2009. Reuters.com {Neurological}

(10) Fibromyalgia

Its exact cause is unknown but is believed to involve psychological, genetic, neurobiological and environmental factors. There is evidence that environmental factors and certain genes increase the risk of developing fibromyalgia; these same genes are also associated with other functional somatic syndromes and major depressive disorder The central symptom of fibromyalgia, namely widespread pain, appears to stem from neurochemical imbalances and the activation of inflammatory pathways in the brain which results in abnormalities in pain-processing. The brains of people with fibromyalgia show functional and structural differences from those of people without fibromyalgia, but it is unclear whether the brain anomalies cause fibromyalgia symptoms, or are the product of an unknown underlying common cause. Some research suggests that these brain anomalies may be the result of childhood stress, or prolonged or severe stress.

Wikipedia {Neurological}

Conclusion – What type of illness is Fibromyalgia?

Out of the top Ten sources for each pair of keywords, those articles states the any of the four or none of the four was the type of disease fibromyalgia is.

Neurological: 6

Autoimmune: 1

Arthritis Related:

Genetic: 1

Not Neurological:

Not Autoimmune: 7

Not Arthritis Related:

Not Genetic:

Inconclusive: 5

Eight Anger Relationships With Fibromyalgia

Eight Anger Relationships With Fibromyalgia

One thing I’ve noticed in the almost thirty-two years of having fibromyalgia is that there are a lot of anger issues associated with the illness. I’ve noticed it in my own life, and in the lives of hundreds of people I have been in contact with that have fibromyalgia themselves.

What are the ways fibromyalgia and anger are connected?

8_anger_relationships

1. Anger toward those who doubt or deny the validity of fibromyalgia.

2. Anger toward all those health care professionals who didn’t diagnose fibromyalgia, who should have known better.

3. Anger at fibromyalgia itself, for the pain and the limitations it causes.

4. Anger at people you thought were your friends, but have since disappeared because of fibromyalgia.

5. Anger at the medical establishment for not taking seriously the plight of fibromyalgia.

6. Anger at the needless suffering of pain from fibromyalgia.

7. Angry toward ourselves for having fibromyalgia.

8. Angry at God or the Universe for letting have fibromyalgia.

As to what the relationship is between fibromyalgia and anger seems to be caused by fibromyalgia. Anger is an emotion and many emotions cause stress and stress aggravate fibromyalgia.

My question is to those of you who suffer from fibromyalgia. Are you angry in relation to it? If so what are you angry about?

I’d like to add it to my list. I plan and writing a Part 2 of this, for my own benefit and maybe it can help someone else with fibro. I think some or a lot of this anger can be dealt with by forgiveness. But that is easier said than done when you get right down to it.

Over 50 Fibromyalgia Sites

Over 50 Informational Links To Fibromyalgia Web Sites

These are quality fibromyalgia sites I have found to be interesting as I have researched fibromyalgia over the years. It is my no means a complete list.  This page is dedicated to all those around the world who suffer from Fibromyalgia and are looking for answers.  These Fibromyalgia links will provide a quality source of information on the scientific and research side of Fibromyalgia. There are also links to other aspects of Fibromyalgia such as exercise and online support groups.  To the best of my ability there will be no links to snake oil remedies or links to hucksters trying to make money off of those who suffer the pain and fog of Fibromyalgia. As more quality web sites come to my attention they will be added to this list. 

50_links_fibro

  1. Fibromyalgia and Social Security
  2. Fibromyalgia Awareness
  3. Fibromyalgia Treating The Hidden Illness
  4. Fibromyalgia Support Groups Offer Hope
  5. Fibromyalgia.Com
  6. Fibromyalgia Mystery Finally Solved
  7. The Medicine Your Doctor Never Told You About But Should Have
  8. New evidence proves chronic fatigue really is a biological disorder
  9. Sensory Distress: The Other Side of Fibromyalgia
  10. The History Of Fibromyalgia
  11. Better Living With Fibromyalgia
  12. Major Fibromyalgia Discovery
  13. Dealing With Trigger Points
  14. The Spoon Theory
  15. Unique Brain Connectivity In Fibromyalgia
  16. Fibro Champions Blog
  17. Fibromyalgia: Life Long Central Nervous System Disorder
  18. Fibromyalgia Symptoms
  19. FibroModer Blog Directoy  
  20. Simmaron Research Scientifically Redefining ME/CFS
  21. Intrinsic Brain Connectivity in Fibromyalgia is Associated with Chronic Pain Intensity 
  22. Unique Brain Connectivity in Fibromyalgia
  23. The 48-Hour Recovery Period in Fibromyalgia & Chronic Fatigue Syndrome 
  24. Brain Fog/Fibro Fog in Fibromyalgia & Chronic Fatigue Syndrome
  25. Chronic Fatigue Syndrome
  26. Fibromyalgia.com
  27. American Chronic Pain Association
  28. Fibro Stretches and Trigger Points
  29. Fibromyalgia Awareness
  30. Over Eighty Symptoms Of Fibromyalgia
  31. Blood Tests and Fibromyalgia
  32. The Brain And Nervous System In Fibromyalgia   FIBRO FOG
  33. Fibro And Core Temperature
  34. Mayo Clinic Fibromyalgia
  35. Patients Like Me
  36. Fibro – Chronic Pain
  37. National Institute of Arthritis Musculoskeletal and Skin Disease – Fibromyalgia 
  38. National Fibromyalgia Research Association
  39. American Fibromyalgia Syndrome Association
  40. Fibromyalgia Network
  41. Fibromyalgia Symptoms
  42. National Fibromyalgia Partnership
  43. Latest On Fibromyalgia
  44. Chronic Pain Website
  45. Sensitive Receptors Excessive Pain
  46. Fixing Fibro…Rem Sleep
  47. What Some Fibro Patients Are Doing To Medically Treat The Symptoms Of Fibromyalgia
  48. Immune System
  49. Is Fibro Real?
  50. I Got Dressed In Real Clothes Today
  51. Fibro & Auto Immune Christian Purple Oasis~”Secret Group”
  52. INVISIBLE DISEASES .com* Support Chronic Fatigue Syndrome /ME, Fibro & Lyme
  53. Fibro Exercise: Walking, Yoga, Stretching etc
  54. Exercises For Fibro
  55. 10 Exercises For People In Pain
  56. About Fibro Exercising From the Mayo Clinic

5 Ways To Have Fun With Fibromyalgia

Five Ways To Have Fun With Fibromyalgia

I have recently written several articles on the downside of fibromyalgia. Makes sense right? Can any fun come from having a terrible, disabling illness like fibromyalgia? The answer is typically no, that is unless you make an attempt to have some fun within the disabling limitations of fibromyalgia, chronic pain or chronic fatigue.

If you can some how manage add some fun to your life you will likely feel less depressed, maybe even feel a degree of happiness and a little contentment. It is easy to watch life pass you by as you lay in bed, the couch or your favorite recliner.

Also if you try to have some fun within your limitations it can help keep your mind be active in a positive way, and hopefully pull some energy away from feeling sorry for yourself and use that energy in giving your life some meaning outside of the crippling pain and other symptoms of fibromyalgia.

1. Read – Watching videos or TV is a passive activity for your mind. Watching TV and Videos isn’t the worse thing you can do and it has its place in this list which we will touch on later. Reading books is an engaging activity for your mind and stimulates your mind while you’re having fun being caught up in an engaging story. Reading is also like exercising your brain but it is an enjoyable event.

2. Listening To Your Favorite Music – While this may seem like a passive way to use your mind, music is different in that it stimulates memories and emotions. I can listen to certain songs that immediately bring up memories that are both good and bad. Don’t listen to the songs with bad memories attached.

3. Sing along With Your Favorite Music – As you are listening to your favorite music sing along to it. It doesn’t matter if you are bedfast or not, you can sing to your favorite music. Watch out though, in the middle of one of your favorite songs you might hear your self really getting caught up in the music and belting out the words like a rock star. That’s even better. If you need to, lock the door and let it roar.

5 ways to have fun

4. Watch TV and Movies – Besides trying to learn ways to have fun within the constraints of your chronic illness, part of the point of this list is to get your mind off of your illness, even if it is only for ten or twenty minutes. Watch exciting TV or videos that catch your attention and get you hooked. This can give you motivation each day to watch the next part in a series of movies or a TV series. I know I said that TV and movie watching is a passive brain activity, but it can also be fun. But don’t just flip the TV on for background noise. Watch comedy’s that make you laugh out loud. Watch documentaries on your favorite subjects, watch the TV with a purpose.

5. Find A Doable Hobby – This idea can be a little more difficult because of the limitations that fibromyalgia, chronic pain and chronic fatigue place on your body. But it’s not impossible. Maybe bird watching might be fun. Rather than hiking in the woods to look for bird you take a passive approach and find a comfortable folding chair and site in your back yard or in a park and watch for bird. The first hobby I picked up was to study World War II. I’ve always been a history buff so I picked up a book that had a general overview of the war, read it, and was hooked on wanting to learn more and more. I would often take a history book with me to read in doctors offices. It was interesting and helped pass the time of day.

What things have you come up with that help occupy your time in a meaningful way? What hobbies can you participate in? Let us know in the comments below.

“I’ve got a large list of other things that you can do to have fun while suffering from fibromyalgia or chronic pain I’ll post later on. Make sure you are a follower so you won’t miss the next several installments.

18 Pain Words With Psychological Meaning

18 Pain Words With Psychological Meaning

I’ve made several posts, well at least two or three that have lists of pain type of symptoms to fibromyalgia. The way this list is different is that theses word have emotion or psychological meaning to them for the sake of diagnosing.

Sharp

Aching

chronic_pain_wordsDull

Tingling

Hot-burning

Tight

Numb

Stabbing

Pounding

Throbbing

Sickening

Cramping

Exhausting

Gnawing

Shooting

Heavy

Tender

Splitting

Look again at the list of description pain words. Doesn’t all pain become exhausting? What about the words heavy, dull and gnawing? Isn’t there a degree of overlap? What about throbbing, aching and pounding? There is a difference in these words but not much. I went to a pain clinic and had to fill out a form where you had to check which descriptive words applied to your pain.

I complained to my PA and he said that those word has a psychological component used to evaluate both the type of pain and the psychological state of mind related to the pain patient. He wouldn’t elaborate any further.

I made this pain in case it helps you in some way communicate your pain to a health care professional. I don’t know if it will mean much but it’s worth considering. Those of us with chronic pain and fibromyalgia can use all the help we can get.

Keep in mind this is posted for your consideration. I am not a health care professional and do not assume any liability. I am passing this on to you for your consideration.

47 Names of Various Pains

47 Names of Various Pains

In honor of Chronic Pain Awareness Month, here are forty-seven terms that identify various types of pain. Wether you have fibromyalgia with fibro fog that makes it hard to think of words, or whether you have other types of chronic pain where the pain so debilitating you can hardly think, here are some terms that you can use to describe when seeking medical attention. I wish I had this list when I first started seeking medical attention eleven years ago.

Ache (Aching)

Acute

Aggravating

Agony (Agonizing)

Battered

Burning

Cramp

Crick

Crumbling

Crushing

Damaging

chronic pain terms

Distress

Dull

Excruciating

Gnawing

Heavy

Hurt

Intense

Malady

Mashing

Mentally Agonizing

Numb (Numbness)

Pulse (ing)

Pulverizing

Piercing

Raging

Scared

Sensation

Searing

Severe

Sharp

Shooting

Sickening

Sore (Soreness)

Squashing

Spasm (Violent spasms)

Splitting

Stabbing

Suffering

Tender

Throb

Tight

Tingling

Tormenting

Torture

Twinge

Vexation

Top Five Symptoms Of Fibromyalgia

Top Five Symptoms Of Fibromyalgia

Over the past week I sent out several requests for fibro patients to list the five worst symptoms they have with fibromyalgia. After tabulating them here are the results. There is a list of seventeen symptoms. The first ten are not surprising. The top five are, to me a little surprising. I do have vision related symptoms but I was surprised that it was mentioned as much as it was and that it was bad enough to be in the top five.

I am a little surprised the sensitivities weren’t a little higher and I am really surprised migraines wasn’t a lot higher and that there was only one complaint of migraines and no complaints of headaches.

Take a look at these symptoms and see how they compare with your top five symptoms. Feel free to tell me what your top five fibro symptoms are.

5 tops fibro syptoms

1 Pain – 17

2 Fog – 12

3 Fatigue – 10

4 Sleep Issues – 7

5 Vision Issues – 5

6 Stiffness – 4

7 IBS – 3

8 Flu like symptoms – 2

9 Noise Sensitivity – 2

10 UV Light Sensitivity – 2

11 Clumsy – 2

12 Light Sensitivity

13 Migraines

14 Neuropathy

15 Muscle cramps/spasms

16 Nausea

17 Ringing in ears

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